Hey Milly

I just wanted to reach out because I read your post and felt as though I might be able to offer some comfort. I was diagnosed with Hodgkins Lymphoma when I was 20 (last year) and underwent chemotherapy and reached remission after three months. I just wanted to let you know that your doctors are doing everything that they can to make sure they cover all of their bases, I know so many people that have tests for lymphoma and it ends up being something completely different. If it turned out to be lymphoma I wanted you to know that it is very curable and I've made so many friends through being ill who are all also in remission or on their way to being!

I know the waiting is awful and it's hard when doctors sugarcoat things because of our age BUT it might be because there isn't anything to share yet! Please don't stress too much, feel free to message me if you'd want to talk on anything else for more advice/reassurance.

Lots of love x

Hey Milly

I just wanted to reach out because I read your post and felt as though I might be able to offer some comfort. I was diagnosed with Hodgkins Lymphoma when I was 20 (last year) and underwent chemotherapy and reached remission after three months. I just wanted to let you know that your doctors are doing everything that they can to make sure they cover all of their bases, I know so many people that have tests for lymphoma and it ends up being something completely different. If it turned out to be lymphoma I wanted you to know that it is very curable and I've made so many friends through being ill who are all also in remission or on their way to being!

I know the waiting is awful and it's hard when doctors sugarcoat things because of our age BUT it might be because there isn't anything to share yet! Please don't stress too much, feel free to message me if you'd want to talk on anything else for more advice/reassurance.

Lots of love x

Hey thank u so much for reaching out, 

That's amazing you went into remission after 3 months, so happy for you! I've read it's common in young people and very curable. Of course it would be a shock and I would rather not have cancer, but I'm feeling optimistic either way. And you're right, I could be reading into how the doctors were acting way to much because I'm paranoid about the whole situation lol, they are just doing their job. 
Milly xx

Hi, 

I'm 22 and in a very similar position. Have had a neck lump for a while, another one came up and have had itchy skin for a while and am now experiencing all sorts of aches and pains in that area

I had bloods which were fine, am awaiting chest x ray results and have an urgent ent appointment on the 12th, feeling very anxious and unable to think positively at the moment x

Hey Milly

I'm 19 and I'm going through the same experience at the moment. I've had a lump on my next for about 6 months, and I finally went to the doctors about it 3 months ago. I'm a heavy smoker so I was terrified about the thought of getting it looked at and it being bad news. I went to my GP and had 2 lots of blood tests done, one came back normal and the other was abnormal. I was given some strong painkillers that somehow made my neck swell even more so I ended up in A&E. I had more blood tests done that came back inconsistent and a chest xray that didn't show anything worrying. I was booked in for an ultrasound and the doctor told me that it was inconclusive and had to be repeated in a few months. Fast forward to now and that second ultrasound is booked in for next week, with a high possibility of a biopsy as well.

In the meantime my anxiety levels have been through the roof. I work in a warehouse and I have no escape from doing pretty heavy lifting all day, and with how I feel at the moment it's hard just to get up in the morning. I'm taking painkillers every day just to get out of bed. My body feels exhausted all the time and I've developed really bad chest pains. It's all been so scary but it's nice to know that I'm not alone and I'm so grateful that I'm not the only one.

I hope you're okay and the doctors can quickly sort it out for you because the waiting is the toughest part. Fingers crossed that I'll get more answers very soon.

Hey, thanks for replying!

it really helps knowing that other people are going through the same experience. Let me know if there's any news.

Milly xx 

Hey please don't worry about the biopsy itself, it's a weird feeling but relatively painless. I completely understand how you feel. I'm already so physically exhausted and waiting is making me mentally exhausted as well. I'm just so drained, I'm meant to be going back to uni soon and haven't managed to get any work done. I couldn't imagine the pain of having to work in a warehouse right now, so well done for carrying on but make sure you're taking care of yourself:). I hope you get your answers soon, let me know how things go.

milly xx 

Hi,

I'm supposed to be going back to uni this week too but don't want to go back until I have some answers, I haven't been able to do any work either as I'm filled with worry it's such a horrible start to the new year. Hope you get the biopsy results soon and that they're all good xx

hey just to update, going to call doctors again tomorrow as the past two days there were shut111 referred me to my gp so wasn't massively useless imo. i have since developed a strange sharp pain at the top of the side of my neck just under my ear which comes on with certain head movements and read it could be due to a tumour so that has panicked me more, hopefully i'm just overreacting but it just seems to be more and more bad symptoms coming my way:(

Yes I have that pain as well, kind of going up the side of the neck right? But I think it might just be to do with the pressure the lump is causing (on nerves or something maybe) so i wouldn't worry too much. I've also been trying to call these past few days and no ones been picking up. I'm going to try again tomorrow aswell.

milly xx 

yeah it's just at the top of my neck under my ear, not constant or anything just when i move in a certain way, the fact it could be pressing on nerves worries me more as that sounds quite sinisterfinally managed to get an appointment later today so hopefully find some answers soon, keep me posted if you do too x

an update on my situ, i went to doctors today and was told it doesn't feel like anything to worry about which is quite reassuring however still not entirely sure as i don't know how they can tell and he didn't really have any answers, however said he would book me in for blood test since i was so worried. so not sure how to feel x