I’m 18 and think I have Lymphoma

I feel like I shouldn't be on here but I don't know what to do. I'm 18 and relatively healthy but I think I may have lymphoma. A lump appeard on the left side of my neck about a month and a half ago. Before Christmas I went to get it checked by a GP, I may be wrong, but it felt to me like they were concerned. They took blood tests the same day and they came back normal. I then got a call just a few hours later that I needed and ultra scan and they confirmed it was a swollen lymph node. I was quite relieved until they called me in again for a second scan and a biopsy. This time I saw the scan and it didn't look right. All the nurses were extremely kind, but to the point they were treating me as if I were a child? Maybe they sensed I was sh*tting myself. But again, it felt like they were concerned, I'm not sure. I had the biopsy on Christmas Eve and I understand that it's New Years and people are busy, but I'm so scared. Everything was happening so quickly and urgently and now there's no news. I just need to know what I'm dealing with here. I can't think about anything else, I can't get out of bed. But that might be because I'm really tired all the time :/ which I read is a symptom. Apart from being tired, the only other symptoms I have is a rash on my stomach, itchy skin and when I drank last night at New Years, the lymph node ached like hell. I feel selfish being so worried, my grandad died a few days before Christmas from cancer and I haven't been in the right mind space to support my dad or even be a positive influence. I can tell I'm draining everyone and i hate it. Although 2020 was horrendous, I was so ready for 2021. I would be going into it with a new relationship, I was ready to finally pass my driving test, see friends again and get my diploma. But all that could change with one phone call and I'm terrified. Sorry for rambling.

Milly

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  • Hey Milly

     

    I just wanted to reach out because I read your post and felt as though I might be able to offer some comfort. I was diagnosed with Hodgkins Lymphoma when I was 20 (last year) and underwent chemotherapy and reached remission after three months. I just wanted to let you know that your doctors are doing everything that they can to make sure they cover all of their bases, I know so many people that have tests for lymphoma and it ends up being something completely different. If it turned out to be lymphoma I wanted you to know that it is very curable and I've made so many friends through being ill who are all also in remission or on their way to being!

     

    I know the waiting is awful and it's hard when doctors sugarcoat things because of our age BUT it might be because there isn't anything to share yet! Please don't stress too much, feel free to message me if you'd want to talk on anything else for more advice/reassurance.

     

    Lots of love x

  • Hey thank u so much for reaching out, 

    That's amazing you went into remission after 3 months, so happy for you! I've read it's common in young people and very curable. Of course it would be a shock and I would rather not have cancer, but I'm feeling optimistic either way. And you're right, I could be reading into how the doctors were acting way to much because I'm paranoid about the whole situation lol, they are just doing their job. 
    Milly xx

  • Hi, 

    I'm 22 and in a very similar position. Have had a neck lump for a while, another one came up and have had itchy skin for a while and am now experiencing all sorts of aches and pains in that area

    I had bloods which were fine, am awaiting chest x ray results and have an urgent ent appointment on the 12th, feeling very anxious and unable to think positively at the moment x

  • Hey Milly

     

    I'm 19 and I'm going through the same experience at the moment. I've had a lump on my next for about 6 months, and I finally went to the doctors about it 3 months ago. I'm a heavy smoker so I was terrified about the thought of getting it looked at and it being bad news. I went to my GP and had 2 lots of blood tests done, one came back normal and the other was abnormal. I was given some strong painkillers that somehow made my neck swell even more so I ended up in A&E. I had more blood tests done that came back inconsistent and a chest xray that didn't show anything worrying. I was booked in for an ultrasound and the doctor told me that it was inconclusive and had to be repeated in a few months. Fast forward to now and that second ultrasound is booked in for next week, with a high possibility of a biopsy as well.

     

    In the meantime my anxiety levels have been through the roof. I work in a warehouse and I have no escape from doing pretty heavy lifting all day, and with how I feel at the moment it's hard just to get up in the morning. I'm taking painkillers every day just to get out of bed. My body feels exhausted all the time and I've developed really bad chest pains. It's all been so scary but it's nice to know that I'm not alone and I'm so grateful that I'm not the only one.

     

    I hope you're okay and the doctors can quickly sort it out for you because the waiting is the toughest part. Fingers crossed that I'll get more answers very soon.

  • Hey, thanks for replying!

    it really helps knowing that other people are going through the same experience. Let me know if there's any news.

    Milly xx 

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