Hi all, this is my first post to the forum so I hope this is in the right place!
First things first, I'm 20 years old and have been waiting for a potential diagnosis of lymphoma for just under a year now. A little bit of a long post so very sorry in advance!
I first noticed what I dismissed as a swollen gland in the summer of 2019, and thought little of it for the first few months. In January of 2020, I took the first step in heading to my GP for reassurance. After examination, I was given an urgent referral to Haemotolgy for suspected lymphoma on a 2 week wait. After multiple appointments, blood tests and ultrasounds it was decided that an excision biopsy would be needed for my left node, as a core biopsy was not possible due to the nodes proximity to my jugular. Whilst my bloods were normal and I didn't display any typical symptoms, the node was enlarged to around 1.5cm on ultrasound and so they wanted it out for further investigation.
This is where things got challenging. The Covid-19 outbreak meant that I travelled from my uni accommodation and back to my home city to be with my family. It was on the first day of being at home that I recieved a call from the hospital requesting I came in that same afternoon for the operation, as they "desperately" wanted the node removed. The urgency behind this call of course panicked me. When I explained that I was now in fact across the country, my consultant explained that she would contact my home city's hospital for the biopsy to be done there, as she had been corresponding with them throughout the process anyway.
Throughout the next six months of lockdown at home I didn't hear a single thing from my home hospital, and eventually Semptember came round and I moved back to my University house to start the new year. I eventually managed to be re-referred to the original haemotolgy team, who sent me for a further ultrasound and moved me across to ENT, who would carry out the operation as it was still considered necessary. By this time, I have been experiencing a fair bit of discomfort in my enlarged node.
Whilst waiting to hear from ENT, I had a telephone follow up with Haemotology, this time with a new consultant that I had not seen in person. He informed me that he did not think a biopsy was needed as I displayed no other symptoms and didn't fit the typical age demographic for this sort of cancer, and I was therefore discharged. He did say however that my node was larger than it should be and some cause for concern, so I should continue to "keep an eye on things".
I know I should be relieved that they have decided a biopsy isn't necessary, but I can't help but feel confused and a little upset after almost a year of waiting for answers, now to be discharged with some uncertainty. I am particularly uncertain as I was discharged on the decision of a consultant who had not seen me before and didn't seem to know about my case. I understand they know what they are doing, but every doctor and consultant up to this point had told me a biopsy is the only real way they could dismiss the possibility of lymphoma. Is it common for doctors to be adamant on wanting an urgent biopsy done, for it to later be overturned by another?
I'm just wondering if anyone else has experienced anything similar, and if I should just take this as a positive and just be relieved? Should I accept that I am probably fine, even if I cannot shake the feeling that I may not be?
Also, is there anyone with lymphoma diagnosis here that did not display the typical symptoms of fever, drenching night sweats, weight loss, itching? And with otherwise normal blood results?
At a bit of a loss as to what to do next, and battling my emotions a bit. I'm still in discomfort with my node and just can't stop the worry of the unknown niggling away at me.
Olivia