Hi All,

I am so glad to have found this forum.  I would love if there was a forum especially for those with angiomyolipoma(s) – I cannot find one online.

So, I was diagnosed with an angiomyolipoma last December (2019) at that stage, it measured 2.9cm – fairly conservative (I think).  Went back for my ultrasound this year and was told on the day that it was 3.1cm – I thought it was a little more growth that I had hoped(I prayed that it would stay the same or disappear – which wasn’t going to happen).

Then, I got a letter from my consultant on Thursday to say it now measures 3.4cmx3.5cm.  I am suitable for surveillance and will be called back for another ultrasound next December (2021).  At that rate of growth, surely it will be over 4cm by then?  Is it when they are 4cm+ that they operate?  I get flank pain often and control it with uddermint and ice. 

Is there anything I should or shouldn’t do?  Eat or shouldn’t eat?

I am awaiting a virtual appointment to discuss all with the consultant – just wondering if any of you have had similar experience and when interventions happen.

Should I still be working?

Thanks so much. :happy: