High risk Hpv with cell changes

Hello there, 

I'm trying not to panic but a recent letter I found a bit vague has got my anxiety through the roof. I have been sent for a colposcopy the letter stays high risk hpv and cell changes, what kind of changes? My last smear was cell changes a year ago

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  • Hi Mandy 

    Firstly a hug - this is a worrying letter to receive and in the middle of Covid even more so.  
     

    Secondly, don't panic!  Which is an awful lot easier to type than do.  I know from recent experience the stresses of waiting for a test result when you've had something out of the blue.  
     

    What you're now on is the start of a journey to investigate something which may - or may not - be a problem.  I'm not going to give you theories about what might or might not be the issue as I'm not a medic.  All I can do is share my experience to try to reassure you that you should ultimately be fine :-)

     

    A few years ago I had a dodgy smear, then a colposcopy which identified changes to the cells in my cervix as CIN3.  Essentially these are cells which, left untreated, would join up together to form a malignant tumour.  The cell changes in the cervix are usually caused by HPV - a virus which girls in secondary school are now vaccinated against.

     

    I then had a Letz Loop Incision - effectively my cervix was hot wired!  A bit uncomfortable and undignified but what it does is remove a thin layer of your cervix including all the naughty cells.  This means they can't join up and make a cancer conga.

     

    I've had smears since and I'm absolutely fine - it's one of those things which if they catch early stops something from being a problem before it starts.

     

    The things is, you just don't know yet how far down the path you are.  Try to use the time before your appointment to think of questions you'd like to ask and write them down.  It might be nothing or it might be something and the balance of probabilities is definitely on your side.  But I know full well that the waiting is sometimes the worst part.

    Anothet hug to finish - keep your chin up, use the waiting time constructively and very best wishes for whatever journey is ahead.

    Take care

    Zoe

     

     

     

  • My appointment is now 20 weeks but might be extended again... I'm tempted to go private as I'm scared to wait, do they know what grade you are with a smear test. I think anxiety high as I know someone who missed out due to covid and now has an aggressive form of cervical cancer... X

  • hi new to this, just wondering if youve been for colposcopy yet?

    ive got mine on wed x

  • Hi, no still waiting xxx how long did you wait for? 

  • I have gone privately.

    I have serious health anxiety, C in particular and waiting would have made me ill.

    I only got my letter back on thur saying ive got borderline changes and HPV.

    All smears have been normally and on time throughout my life.

    im absolutely terrified x

  • I can relate to the health anxiety its awful, im still considering going private, a nurse told me to hang fire... I just feel the wait is going to be longer xx 

  • No way I could have waited, ive been so ill these past two days and have no idea how ill be come wed.

    Just want it done now.

    Literally consuming every thought x

  • I understand ive been there, it gets a hold of you. You have borderline changes so im sire you will be fine, the screening process is great, i just want tested at the the time i should be tested thats what worries me. A morbid thought but if its not a colposcopy it'll be something else we will all get older and things going wrong with our bodies. We need to try and live in the now and enjoy life. I do understand anxiety though i live with it every day, its a battle... Need to keep fighting though nothing else for it x

  • reading through your earlier posts, you have the same changes as me? x

  • Yes borderline changes with high risk hpv... Ive had 2 colposcopys before once they took i biopsy. It is a worry, but try and look after yourself because stress will make you ill aswell. Im going to chase my appointment and see whwre the land lies, if its going to be alit longer i might consider going private. Xx the screening process is there to check and double check which is fantastic. The waiting times for anything because of covid is horrible and should never have happened, the backlog will stress the nhs x

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  • Yes borderline changes with high risk hpv... Ive had 2 colposcopys before once they took i biopsy. It is a worry, but try and look after yourself because stress will make you ill aswell. Im going to chase my appointment and see whwre the land lies, if its going to be alit longer i might consider going private. Xx the screening process is there to check and double check which is fantastic. The waiting times for anything because of covid is horrible and should never have happened, the backlog will stress the nhs x

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