So afraid I have ovarian cancer. Ca125 raised

Hi all, I've been reading lots of posts on here about ovarian cancer and ca125.

ive been having pelvic pain (back and front), bloating, loss of appetite and urinary frequency at night. I've also had pain down my right leg. My last cycle (the only one I've tracked) was a 36 day.

Because of these symptoms I had bloods done and my ca125 came back as high. I was referred urgently. I'm off for a scan later today. I've been awake most the night because of the discomfort and the sheer panic.

im not even sure why I'm posting. Maybe to hear of some good outcomes?

im 32. I have three beautiful and young children and I'm completely torn to pieces by this and not coping well at all. I feel I can't possibly even go to this scan but obviously I absolutely have to. 
 

im devastated that looking back I probably should have seen a doctor sooner. 
 

one thing I'm confused about is how quickly my symptoms have progressed. I feel like the bloating and especially the pelvic pain and Horne frequency have got very uncomfortable over a matter of days. I read online ovarian cancer symptoms can come on suddenly.

i hope everyone here is well. I'm sorry for my rambles. I'm truly so frightened because I think I know they will have to find it today because my symptoms match so perfectly.

im trying to remain positive believe it or not but my mind just wanders to my children and I completely break down and can't cope.

any insights would be greatly appreciated.

thanks

kim

  • Hi Kim.

    Sorry to hear about your situation. You must be, understandably, concerned.

    I am in a similar situation in terms of a raised ca125 result. I had blood tests a few days ago and was called into the doctors yesterday to be told that the level was 90 and I'm now waiting for a scan sometime in the coming two weeks. I'm absolutely terrified. I've had stomach/abdomen issues for a year now.

    Hoping for the best for you, take care.

  • Hi Lyrham45

    the siting is so hard. Obviously we become hyper aware of everything too so it's hard to know if somethings been there all along.

    i think today will be hard because obviously sonographers generally tell you when all is ok so if he/she doesn't I'll know they've seen something. I'm actually holding they do find a benign something so that it explains all these symptoms because it's certainly not in my head.

    it's nice to chat to someone. I feel like I've exhausted my husband.

    i hope you get a date for your scan soon. 
     

    my ca125 was 67. 
    kim

  • You're right - the waiting is torturous. Night times are the worst.

    As I said, I've been having issues since last December and, in February, a lesion was found in my liver which was also terrifying. It ended up being a non focal hyperplasia which is a benign growth and nothing to be concerned about. Once that was found i think I assumed everything was to do with that and sort of got on with life again. However, my tummy symptoms were still there really and have got a bit worse hence a revisit to my dr. And here we are!

    I got the results yesterday and, unbelievably, it was my birthday. Bad timing - although there's never really a good time!

    I really hope all goes well for you today. It is nice to chat to someone.

    Keep in touch and take care.

  • Hi Lytham44,

    Your liver story is yet another reason we shouldn't always assume the worst. Thanks for sharing. I bet that was petrifying.

    Ive also had a hard year for other health worries but thankfully it turned out to be a false alarm. I just hope this is too. For us both and everyone going through this.

     

    i also find the nights so hard. It's also when I'm most uncomfortable with the dull aches.

    im sat here trying to keep it together and get the girls to school and nursery but inside I'm a crumbled mess.

    i promise to keep you updated. Good or bad. 
     

    speak soon

    kim

  • Hi Lytham45,

    I'm indescribably happy to report a 'normal' scan. I say that because she said my ovaries have lots of little cysts in but assured me this is benign. She didn't know is PCOS could caused raised ca125 and the bloating and aches I've been having.

    i have an appointment with the gynaecologist tomorrow and so I will write down all my questions and report back. 
    Obviously the ca levels will need to be monitored now.

    i honestly feel so happy and so relieved and so shocked as I think my severe health anxiety had connected all the dots in a bad way. I had some very dark thoughts yesterday. 
     

    i wish everyone going through this all the very best because I've learnt a lot about OC in the last few days and it's so scary. My heart genuinely bleeds for those who get a diagnosis.

    Always here for a chat and please let me know how you get on.

    here's to living life to the full!

    thanks ever so much. Kim

  • Oh I'm so pleased for you! That's fantastic news! You must be so relieved. You can now look forward to enjoying the festive season. 

    Take care x

  • Yes it's great news. Still sinking in yet. Please let me know how you get on. X

  • Hi

    How are you doing? How did the appointment go? I have a date for my scan - next Friday. Still feeling a little worried and wishing time would speed up!

    Hope all is well

  • Hi there,

    im being referred for further tests. Mri and colonoscopy. I'm still so worried.

    nomimprovement in symptoms either.

    they are repeating my blood next week too. 
     

    glad you got a scan date. How are you holding up?