Worried about Ovarian Cancer

Hi,

 

I have an internal ultrasound on Friday, so i'm really happy that i'm only days away from understanding what is going on. But nonetheless, I can't help but worry to the point I can't eat or sleep properly. I know no-one here can diagnose me, or really help me, but putting it down in words might make me feel better.

 

My mind knows that there's a 99.99% chance I just have a very bad ovarian cyst, but that 0.01% of my brain won't leave me alone from worrying about something worse. I have had pelvic pain for months on end, some days it feels like my pelvis might just collapse and give in. I missed 4 periods in a row. I have barely any appetite. I get stomach pains too. My doctor did an internal exam (which was painful) and could also feel something on the offending side internally which really confirmed what I already knew, something is lurking inside me and I need to know what it is. I wasn't too panicked up until this point. The pain extends most of the time from my pelvis into my lower right and sometimes mid-back. Sometimes down my leg. I am weeing more and more frequently. Whatever it is, is clearly "pressing" on whatever is around it.

 

Has anyone experienced similar but it turned out to be just a cyst etc? Looking for re-assurance.

 

Thank you all :)

  • Hi Jen, I hope you are ok? 

     

    I'm sorry to read you are going through this too. I don't have any answers unfortunately as I'm in a similar position. A few weeks ago I had pain in the left side of my back, pelvis and groin. It was so bad I was vomiting all day. By the night time I thought I should go to the walk in centre. At first they thought i might have kidney stones, but after a CT scan it showed i had a right ovarian cyst. I already have a 7cm fibroid on my left side. 

    About two weeks ago I had an internal ultra sound (dont worry about this, it wasn't painful and didn't take long.)

    Today I went back to hospital to see the consultant. They took biopsies and more blood work. They said my blood levels for cancers and tumours was low but the ultra sound showed my cyst to have abnormalities. It is also quite large at 9cm. I have to have an MRI this Sunday. I'm the same as you, I can't eat or sleep and my mind is all over the place. Im really emotional and very scared. The Dr. I saw today said I will need to have an operation to remove the cyst. I'm just really nervous for my other results to come back. I was told it could take a few weeks. The waiting and not knowing is so hard, especially if you think you could have cancer.

     

    I hope you get the answers you need soon.

     

    SJ    xo

  • Yes, actually; mine turned out to be an 11 cm endometrioma.  I was quite uncomfortable with it, but it wasn't cancerous.  Fingers crossed that's something like what you're dealing with.

  • So glad to hear that your diagnosis wasn't cancerous. Wonderful news! Thanks so much for taking the time to write back and re-assure me!

  • Hi SJ,

     

    First, thanks so much for taking the time to stop and read my post and reply, it's really appreciated!

     

    I'm so sorry to hear you seem to be in the same boat as me right now. At least you're further along the process and although you're really worried you're in the right hands! I can only imagine how frustrating and worrying the waiting must be. I think it's good news at least that they are scheduling you in for removal and fingers crossed the next few weeks fly by quickly and you can get some peace of mind once your results come back! I have my fingers and toes crossed for you for good news.

     

    Remember to concentrate on the fact that even if the results do come back as cancerous, which they may not, they have found it, they are removing it. You are going to be OK. You've got this!

     

    Please let me know how you get on!

     

    I'm starting to worry now about the scan on Friday, I was hoping for answers but i've read so many stories of the internal scans showing nothing and then people still turn out to have ovarian cancer. I just hope and pray that everything goes right on the day and I can get the answers I need one way or another for sure. At 30 I shouldn't be in constant pain! I can feel whatever it is in there twingeing as well lately. Hopefully this is a positive sign that it's more likely just a cyst that's getting angry!

     

    Jen xx