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Possible Symptoms?

Pearl81631
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Hi all,

I'm after some advice re symptoms please(both that did and did not turn out to be bladder cancer). 


So, nearly a couple of weeks ago I had what I thought was cystitis, for about the 4th time in the last few weeks. 
Did my normal, took cystitis relief sachets but it stayed. 
Then 9 days ago I started peeing blood. Not a few drops in my urine, but full on red claret wee. 
Dr prescribed antibiotics for a UTI and sent a urine sample off. 
Dr called 2 days ago and said there was no sign of infection in my sample. So I would hear from the hospital very soon about having a cystoscopy. 
She didn't really say anything else. No explanation of what the cystoscopy was or what they were looking for wtc. 
In total I took 7 days of antibiotics, which finished 2 days ago, but im still urinating more frequently amd it stings when I go. 
I've been having night sweats for the last 2 months, so I'm exhausted as I'm waking so much in the night because of it. 
I've also not had much of an appetite for a while now. My BMI is normally about 19, but it's now at 18 and I look so gaunt. 

I've also had lower back pain off and on for a few weeks too. 
Just to add, I'm a 38 year old female. 
Obviously after spending many hours using Dr Google(I know I shouldn't have done, but after googling cystoscopy, BC was mentioned) im concerned, as all my symptoms seem to point towards it. 
 

I'm basically wondering if anyone else has had similar symptoms and it turned out to be something else? 
 

thank you in advance, and sorry for the long rambling post!

 

  • Offline

    Hi,

     

    I'm 41. Have had 4 urine tests with trace blood. Am being sent for a two procedures to check my bladder this week - Tuesday and Thursday. I've been told my symptoms are sinister.  I've also had to have a urine sample tested for malignant cells.  Google has also not been my friend. 100% convinced I have bladder cancer and that will be confirmed this week. I'm crying constantly. So afraid. 

     

    So, no other explanation but wanted you to know, you aren't alone.

  • Offline in reply to Pigginpigs

    Oh bless you, the not knowing is just so hard isn't it?! 
    If you don't mind me asking, what were/are your symptoms? That's not the best though, being told they're sinister and then leaving you hanging like that. 
    I've also convinced myself that's what I have. 
    And all I keep thinking about is how I would tell my 3 children

    Thank you for not reading and running. As much as you don't want others to be in the same situation, there is some comfort to know you're not alone x 

  • Offline in reply to Pearl81631

    I just keep on thinking of my 10 year old daughter. How do I tell her I won't be around. Then I cry even more. 

     

    As far as symptoms, none. I had a blood clot in my leg in April. So was treated for this. As part of this, I needed urine tests. That's when the blood has been found. Other than that...nothing. I have a bad back but have suffered on an off with this for many, many years. 

     

    I am scared stiff. So afraid of what this week will bring. Is it better not knowing and just suspecting? Or is it better knowing for definite? I have no answer. I am just so scared. And the urologist I saw really upset me and wasnt interested in me at all. Just told me it was sinister and I'd be sent for fast track tests and know the final outcome in 5-6 weeks. I'm a wreck. So tired as I'm not sleeping. 

  • Offline in reply to Pigginpigs

    I fully understand that. My 16 year old knows what I'm having done(as he was there when the dr called and told me about needing a cystoscopy) and what it's for. 
    But just thinking about 1. having to somehow tell my 13 year old daughter and 2. I wouldn't actually be able to tell my other daughter as she is only 2 years old. The thought of any of them having to be without their mum just fills me with shaking dread. 
    I lost my mum almost 6 years ago(she was only 57, she had MS), and I feel lost without a mum, even at my age, so the idea of my children being motherless...

    Oh I see. It's just so hard. 
    And that's how I feel right now. At least at this point I don't know anything for sure. And I can't seem to work out if that is a good or a bad thing?! 

    But I bet you are, especially after hearing that x 

  • Offline

    Hi Pearl81631,

    Have you had an update on your symptoms? Did you find out what was wrong?

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