Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Glad this is helping as much as its helping me.

    Mine was Moderna so seems they all might do it...

    Fingers crossed couple of weeks down the line we're all immune & lump free

  • Hi all,

    i feel a bit better seeing this chat, it's helped me relax a little. 
    I had my first Pfizer jab about 10 week's ago and had no side effects at all apart from a dead arm for the day, but 3days later I noticed a lump in the middle of my collar bone (sternal notch) didn't worry to much about it as it just felt like a fatty deposit and gp advised to leave it a month. I didn't think much more about it until my second jab 2 weeks ago. lymph nodes up on my left side, the day after and still now today and is a hard pea size lump within the fatty deposit mentioned earlier in the sternal notch. I have been back to gp and am now waiting for a blood test next week. Has anyone else here had or got a lump in the sternal notch area?

     

     

  • Glad this has helped a little.

    Mine is on neck 2 inches above collarbone. Most on here seem to be above or on collarbone.

    Did GP examine you? I managed to get hands on mine & was reassuring. Consistency, size & my lack of any red flags seemed to influence that. But bloods in couple of weeks if it doesn't go.

    There are people on here with lumps for weeks though.

    If it is sitting there small & not growing and on same side as vaccine then hopefully nothing will come of it.

  • Hi

     

    i hope your scan goes well today, please let us know what they say and hopefully then I you can relax 

    xx

  • Hey folks,

    Glad I found this forum. Thought I would chime in with my experience so far. 42 M.

    28/4/2021 - had first shot of Astrazeneca

    30/4/2021 - first noticed small lump above colar bone same same side as shot (left). When I noticed it I described it as like the pill Morpheus offers Keanu in the Matrix. But just like most people have described here.

    9/5/2021 - can't stop touching it just like everyone else. Seems to have started to reduce today. I had a very hot bath last night not sure if that may have helped. Hopefully it will keep getting smaller. I am gonna try not to touch it till Friday to see if the difference is more noticeable that way.

    It has been reassuring reading all your posts so far. Definitely seems like a fairly common side effect. I have not yellow card reported it yet, I imagine there are a lot of people who haven't so maybe it's under reported.

    Thanks

  • Hello

    I think same, I put warm water on it in the shower but I think me keep checking it doesn't help!

    I had my vaccine on 25 April and noticed it a couple of days after and I think mine might be reducing? 

    There is another post where someone is same and had her 2nd shot on the other arm to see if same reaction and it did!

     

    Sending best wishes to all

  • Aw, thank you. And I can relax! I was told that the lymph nodes are just a bit swollen (the right one in particular), but no further action is required. So nothing nasty found there, and I should only contact my GP and go back if lymph nodes start getting noticeably bigger and visible.

    He said that the same thing could happen again after the second jab and that lymph nodes can stay swollen for months or even a year! 

    I hope everyone else gets such a good result and feels reassured.

    xx

  • That's great news I'm so pleased do you but that's such a long time for the lymph nodes to stay up isn't it 

  • So glad to hear that - it must be a big relief! 
    Mine is slowly reducing so I am feeling more relaxed now. Thanks for keeping us updated

    Jx

  • I think the nodes go down much quicker with some people

Reply Children
  • Mine is definitely smaller now too.

    I thought it would flush in one go sort of thing but it seems that it's going to slowly go down.

  • I have been finding these posts really helpful and so I thought I would post my experience too. I had the AstraZeneca vaccine on the 1st April in my left arm. On the 9th April I discovered I had a swollen lymph node nestled next to my left collarbone. It was about 1.5cm, mobile and softish. I don’t know how I discovered it because it is not an area I thought I touched very much. I also don’t know how long it had been there for. I went to see my GP on the 26th April. The lump hadn’t changed in size at that point. She arranged a blood test and told me to wait another couple of weeks to see if it shrinks, before coming back. During that wait, the lump began to diminish in size but it is a very slow process. I saw the GP again on the 10 May and she was pleased that it had gone down in size by about half. The lump is still mobile and soft. My blood was all fine. She has told me to come back again if the lump doesn’t keep diminishing but seemed happy that it is more than likely due to the vaccine. I do feel relieved that it is getting smaller but it is taking a long time.

  • It does seem to take different amounts of time for different people. Mine is slowly getting smaller. Two weeks since it first appeared. 

  • I'm so glad I've found these posts. I had my 2nd Pfizer jab Friday 30th April. The next day my collarbone felt tender left side and then I felt a lump near my collarbone. It moves when pressed and I can only feel it in certain positions. Called the GP last week who never mentioned could be caused by the vaccine and really frightened me. When I then asked if could be vaccine he said um possibly but call back if still there end of this week to arrange bloods. I'm so terrified. 

  • Actually my swollen right node seems as big as ever after 7 weeks, but the ultrasound man said 'no further action'  – unless it gets bigger. My second vaccination is on 22nd May. We'll see whether another node comes up or not....Hope the first one doesn't get bigger!

  • This sounds like the same thing that I and other people here have experienced. Bloods and ultrasound were OK for me and others, so try not to be worried, and think of other things as much as you can. I think it is becoming known as quite a common vaccine reaction

  • 3 weeks in no change in lump for me. Still mobile, firmer than tissue round it & smooth. Its basically like a small butter bean. Not visible unless feel for it. Left lower neck.

    Had bloods done & fine. Referred for ultrasound as routine as lump under 2cm.

    Thinking about paying private if referral comes with silly wait time.

  • What would be useful is a big table of everyone that had this and how many weeks it lasted for each of them. Especially those who it has gone for now. 

    Mine is definitely very slowly getting smaller. It was good to forget about it for a few days, otherwise you will constantly be touching it. It feels bigger when you put your neck in certain position... different if you touch it with your thumb or finger. 

    If you can just leave it and only check for size in the same position every few days.

  • I see what you mean about the thumb and finger! Working from home gives me too much time to keep playing with it. I'm about 12 weeks past my first jab and the original node is still swollen. ( I noticed it 4 days after my AZ vaccination) I think it's very slowly decreasing but definitely not growing. Interestingly after my second vaccination a second swollen node appeared close to the first one but that seems to have gone down. There do seem to be more and more people reporting this side effect!

     

     

  • The ultrasound operator I saw said that lymph nodes can stay up for months or even a year, and so that reassured me a bit, although I might worry a little if everyone's goes down apart from mine!
    xx