Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

Let me know how you get on .... 
xx

Hi

My scan has come through as a soft tissue ultrasound on 12th May, not sure whether to keep private one for Saturday now.

You won't need two ultrasound scans, but it depends how worried you are ... can you wait until 12th May? Some of us have had the swollen lymph nodes for quite a few weeks, with no problem coming up on blood tests. Hope it will all be fine, whichever scan you attend xx

Hi

i think I would of been more relaxed if the second one on opposite side hadn't of come up 

Hi everyone. I've been following this post with interest/anxiety but up till now I've been too worried to post myself. I wanted to share my story in case it helps anyone else who's looking for answers now or in the future.
 

I had my first Covid (AZ) vaccine on 22/1/21 and two months later at the end of March I noticed a smooth rubbery mass above my left collarbone (same side I had vaccine in). it's quite big, a few cms across and I have no idea how long it has been there. I went to GP immediately who didn't think it was a lymph node and thought it was a lipoma. He arranged an ultrasound which isn't till 10 May. In the meantime I booked via private GP (who was very concerned) to see a private specialist (a Haemato-Oncologist) who was also very concerned. He told me I had a 'conglomerate of rubbery lymph nodes that were abnormal' and required urgent ultrasound/biopsy. Said he suspected lymphoma (he seemed more convinced of this as my Dad died of leukemia aged 66 not too long ago and he thought it could be related). I had not been too concerned before this as I found out about the Covid vaccine link and the pictures from the Spanish study look exactly the same as my lump. However, he said this would be the very last differential diagnosis on his list although he did acknowledge it's a common side effect. (For what it's worth I since had my second vaccine on the other side just so I could differentiate symptoms. Nothing has appeared there). 

I had the ultrasound today and the Dr who did it said it is definitely not lymph nodes and that she thinks it's a lipoma or some muscle. But nothing sinister and either way she was sure it was benign. Not lymphoma and not lymph nodes though. Sending me for MRI anyway so they can be sure what it is but not at all concerned. So I just wanted to reassure anyone that's worried that even if a specialist thinks it's worrying, a supraclavicular mass doesn't always have a bad outcome! I had some bloods done as well and haven't received results yet but did hear that the Dr would phone me if anything alarming came up. 
 

In the end my lump was probably not linked to Covid vaccine but I will post again after MRI in case anyone wants to know the final outcome/what they decide it is. 

I hope everyone gets good news soon and that the time passes quickly till your ultrasound scans. I know how worrying the waiting is.

All the best.  

I posted a few weeks ago about my swollen collarbone lymph node which appeared 4 days after the AZ jab on the same side. I had the jab on the 25th of March and the node enlarged on the 29th. It was initially quite big but as the weeks went by it gradually got smaller. Monday last was exactly a month since it appeared and it had gone down significantly by then and today I can hardly feel it at all. I'm now convinced it was the jab.

I went on a covid jab side effects group on fb from the states and alot of people are discussing this. It appears to be happening quite a bit as so many people are being vaccinated. It showed up in the trials too.

I decided to monitor mine for a few weeks  which doctors were advising people to do in the States and if it didn't go away then go to the docs.

My friend said it always happens to her after the flu jab and that it's her immune system kicking in strongly and thst it has happened when she's had the flu too.

I had to stop myself prodding it as it could make it uncomfortable.

I hope it doesn't happen with the next jab. I intend having it in my other arm and I'll see if it happens on the other side and also my arm muscle is still a tiny bit tender 5 weeks after having the jab. Has anyone else had that? Both a friend and a neighbour still have painful upper arm muscles. One had the jab in Feb!!

Regards 

Lxx

Hi

so I went for the private ultrasound today and it was hard to find the lymph nodes when laying down but he went along both sides of the collarbone found 1 on one side was 6mm and the other side was 4mm

he said they are normal reactive lymph nodes and should disappear in time and nothing worrying about them 

so I am so relieved x 

Ah, that's such brilliant news. It has brightened my day!

Fantastic news. So pleased for you. 

I think quite a few people, including myself are experiencing this side effect and it varies in time with each person how quickly it goes back to normal. With me it took 5 weeks nearly.

I will be reporting mine to the Yellow card scheme today so that they have a clear picture how many people this affects.

Best regards 

Lx

Hello Everyone

I am so relieved to find this post. Firstly I hope you are all ok? It seems as though there are quite a lot of us feeling the same.

I have my first AZ vaccine on Sunday 25 April. Felt fine and then in the night had the shivers etc. On Tuesday I felt a smooth moveable lump on the left collarbone, just above it but moves on to it? About a centimetre with smooth edges. I think it was a but painful but not really now, although I am always checking it and I reckon I need to stop that! It is the same side as where I had my vaccine.

I called the GP practice who in turn got the doctor to call me.  I was so anxious and worried and just wanted reassurance. He said to me there was no point in me seeing him as he would just be telling me what I already knew and that there is a lump. I felt so upset and said surely anyone who finds a lump at least has the right for a doc to see it, even if they are unsure. He said he would only do investigations if it was there still in a week or so.

I was really upset as I thought we are always told to get lumps checked and if the GP had that attitude then it would stop already anxious people getting checked.

I have since seen a doctor who didn't seem worried at all and thinks it is the vaccine but has offered me an ultrasound scan in any case to back up what he thinks. I have this on 01 June. 

sometimes I feel it and I think it has gone down and other times it hasn't (think wishful thinking!). 
 

I am a natural born worrier but this post has put my mind at ease and also I know of a couple of people who have had the same and their lumps have gone.

Sending beat wishes to you all.

I have also put a note into the GP practice to ask if that is their position when patients phone up with a lump that we just have to 'see how it goes' in the first instance. I still do not know what mine is yet and I am really anxious but this post has helped and it coincides with my AZ vaccine but I feel like a nuisance with how the GP practice was at first.

If anything, I hope my note to the GP let's them think about how the patient feels before dismissing it.

X

Hello Everyone

I am so relieved to find this post. Firstly I hope you are all ok? It seems as though there are quite a lot of us feeling the same.

I have my first AZ vaccine on Sunday 25 April. Felt fine and then in the night had the shivers etc. On Tuesday I felt a smooth moveable lump on the left collarbone, just above it but moves on to it? About a centimetre with smooth edges. I think it was a but painful but not really now, although I am always checking it and I reckon I need to stop that! It is the same side as where I had my vaccine.

I called the GP practice who in turn got the doctor to call me.  I was so anxious and worried and just wanted reassurance. He said to me there was no point in me seeing him as he would just be telling me what I already knew and that there is a lump. I felt so upset and said surely anyone who finds a lump at least has the right for a doc to see it, even if they are unsure. He said he would only do investigations if it was there still in a week or so.

I was really upset as I thought we are always told to get lumps checked and if the GP had that attitude then it would stop already anxious people getting checked.

I have since seen a doctor who didn't seem worried at all and thinks it is the vaccine but has offered me an ultrasound scan in any case to back up what he thinks. I have this on 01 June. 

sometimes I feel it and I think it has gone down and other times it hasn't (think wishful thinking!). 
 

I am a natural born worrier but this post has put my mind at ease and also I know of a couple of people who have had the same and their lumps have gone.

Sending beat wishes to you all.

I have also put a note into the GP practice to ask if that is their position when patients phone up with a lump that we just have to 'see how it goes' in the first instance. I still do not know what mine is yet and I am really anxious but this post has helped and it coincides with my AZ vaccine but I feel like a nuisance with how the GP practice was at first.

If anything, I hope my note to the GP let's them think about how the patient feels before dismissing it.

X

Hi - I also have this.

Moderna vaccine 8 days ago,2-3 days after that found a small lump 2-3cm above collarbone that I'd describe like a small kidney bean under skin. It moves a little. Same side. Arm itself was really sore for a week. I had chills & a sore chest for about 48hrs after the vaccine,sort of like onset of a chest cold that never happened.

What is the consensus on here about how long to leave this before going to docs? I looked online & seems to say 2-3 weeks, but there are people on here at 5 weeks. I did an online consult with a Doc who wasn't concerned in the slightest & said leave for a couple of months!!

Hello

I called the docs the day I found it as I didn't even think it could be vaccine related. I was always under the impression that any lump should be checked but my GP didn't even want to see and said he would only look after a few weeks but I was so upset as I didn't know what it could be.

I am going for an ultrasound but that is on 01 June. The doctor said it is for peace of mind.

I get the feeling that the more well documented this probable vaccine reaction becomes, the less concern there is from the GPs. A blood test can be done really quickly and easily though, for some initial reassurance.

It can take two or three weeks for the ultrasound appointment to come through, after being told to wait for x number of weeks to see if the lump goes down on its own. Mine will be: one week from the vaccination before I saw a GP (I was really scared when I found it, having had breast cancer), 3 weeks waiting (with instructions not to keep prodding it!) before the second appointment, then another 3 weeks until the ultrasound in just over a week from now so 7 weeks in total. Scrolling through, it looks as if those on this chat who have had the ultrasound have been given the 'benign' verdict, which is so good to hear.

I had my second AZ jab last Sunday and another node popped up a few days later next to the original one on my collarbone . The first one is still palpable but much smaller now so I'm waiting to see what happens with this one! I'm sort of reassured that it appeared after my second vaccination - and convinced that they must be connected. I have had clear blood tests so am giving the second one time to resolve - seems they take a lot longer than the medical profession expected and I'm sure we are just a small sample of the people who have had this side effect. I did mention it to the nurse who vaccinated me and she said not to worry as it's a fairly common occurrence. Hopefully it will work out well for everyone but definitely scary at the time. 

Jx
 

That's interesting. I can definitely feel one on each collarbone now, same place, 6 weeks after the first jab. Thankfully my blood test was clear, too. We'll all be interested to find out what happens after jab no. 2. Thanks for being the pioneer and also the first person to reassure me a lot via this chat.

Ro x

Thank you - I always find your posts so positive too. It's just good to know that you are not alone with your worries. I'm still having problems not leaving the nodes alone though!! Hopefully it will be a positive outcome for everyone who has posted here.

Jx

Hi NUFC

I had my node come up on my right arm side where I had the jab 4 days later. I was alarmed at first bit then did some reading and joined this forum. From all the reading I did and experiences I read about the swellings seemed to last between a few days and up to six weeks.

I decided to watch and wait for a few weeks to see what happened and basically my node was initially quite large, and it even felt like there were several but by last Monday which was four weeks since it came up it felt tiny and now, exactly 5 weeks after it came up I can not feel it. 

I read that in the U. S quite a few people are getting these collarbone  and armpit nodes coming up quite a bit following the Moderna jab (I had the Oxford AZ here in the UK) and women are being advised to go for routine breast screening before the jab or to wait around 6 weeks before they go for it as the vaccines are causing the swollen nodes thst are, showing up on mammograms and causing alarm.

Always worth consulting a doctor if you are worried though. It's up to the individual.

I am thinking of having my second jab in the other arm and I'll see if it happens again on that side this time. I'm not keen on having it in my right arm again as I still have some stiffness in the upper arm muscle five weeks later!! My neighbour and a friend have the same.

Another friend of mine who us a nurse had painful lymph nodes come up under her arm  whiclastrd about a week so it does seem to be a fairly common reaction. The body's immune system kicking in. Doesn't happen in every person but obviously quite a few due to mass vaccination. Another friend told me she has this collarbone reaction after every annual flu shot.

Keep us posted how you get on. 

Best regards

Lx

I had to stop myself prodding my node as I was making it a bit sore and, when I turned my head I got a funny sensation like I'd trapped a muscle. It was definitely because I'd been prodding around too much like you do  

Once I stopped it got better. My node gradually reduced as time went on as I have been noticing people saying. I guess when they go up so big it is going to take a while for them to come down again. Mine was quite big initially and actually there seemed to be  two. Quite worrying at the time.

How are you getting on now? 

Best regards

Lx

So reassuring to chat with other people this is happening to.

Lx

Thanks for the replies!

Yes definitely reassuring, it does very much sound like an under reported side effect. I have to admit I can't leave the thing alone...

Mine is still there & whilst I wouldn't say its getting any smaller it seems to have "softened" a little.

I do suffer health anxiety & this just caught me at a bad time I think. 

I spent a few quid on an online doctor who dismissed it completely & said might take months but forget about it unless it gets larger. His point was that in some skinny folk (me) you can notice even the tiniest node.

Hopefully posts on here help anyone reading them.