Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

PS I had a blood test too. No result so far, which must be good news. I could phone the surgery later today to make sure it's fine. I'm glad that other people's blood tests have been OK.

Hi,

My scan is next week, I know what you mean about the difficult days, to be honest it's never left my mind since I discovered them. One of them feels really quite large but it's so hard to tell as it's quite deep in the armpit & I don't want to keep feeling it in case I make it bigger! 
 

I had the Covid jab just over 10 weeks ago but I've only just found the nodes so it's hard to know how long they've been there. I wish I'd have known about the lymph node side effect and I would've had a good check before I went!

Again so glad for you, at least you can put this behind you now, I know how scary it is. X

I was the same with not wanting to prod it too much in case that kept it enlarged. I even googled if that is a thing but couldn't find a clear answer. 

I also don't know how long mine was there before I found it, so it could have been very soon after the jab that it appeared. The second jab didn't seem to make it bigger. 

The friend of a friend who had the same thing had what she described as a large mass in her armpit, so I've got my fingers crossed that it is just the covid jab for you too. 

Keep us updated x

Hi

I do hope it works out ok for everyone. The worry can certainly be overwhelming! I have had my swollen collarbone node for 10 weeks now ( I noticed it about 3 days after the first jab) and it has only just started reducing in size  - seems like they are now realising they can take some time to go down. My bloods were ok too  - it feels positive that seems to be the case for so many of us. I haven't had an ultrasound appointment yet - and wondering if there will be any similar side effects after my second AZ jab this Sunday. 

Good luck for your ultrasound x

Thank you x

Update of the update: my blood test results are normal, which is good. Hopefully we are all having similar reassuring results. 

Great news! 
 

Jx

Thanks!

Next: ultrasound?

I was so glad to read that your swollen node is finally getting smaller after so many weeks .....

x

Hi

I have experienced a swollen lymph node in collarbone region on side of vaccine it's been there nearly 2 weeks and been referred by GP for an ultrasound she said not concerned as it's mobile and smooth and it's probably a reactive node, I was ok with this but now I can feel one on the other side of the collarbone so now I'm really worried again it feels smooth and mobile  it not sure why it's come up on opposite side 

Hi

I have experienced a swollen lymph node in collarbone region on side of vaccine it's been there nearly 2 weeks and been referred by GP for an ultrasound she said not concerned as it's mobile and smooth and it's probably a reactive node, I was ok with this but now I can feel one on the other side of the collarbone so now I'm really worried again it feels smooth and mobile  it not sure why it's come up on opposite side 

Hi

The GP said the same to me. I had thought there might be a smaller swollen lymph node on the other side (noticed just over a week ago) and the GP found it too and has referred me for an ultrasound on both sides. However, that was last Monday (a week ago) and I haven't heard anything about an ultrasound appointment yet, even though it is fast tracked. It's now just over 5 weeks since the vaccination for me. 
I'm not sure about the lymph node coming up on the other side either, but the GP didn't appear very concerned in my case. Perhaps they could ultrasound both sides for you, if you ask. Hope this helps. 

Hi

Thanks for the reply, sounds like we are in the same situation, how does your original one feel? Mine is oval shaped and smooth and mobile but doesn't seem to have changed since appearing and it gets tender if I press around it too much but it's hard not to, the other side seems smaller and again same shape and feeling.

im guessing the ultrasound will come within 2 weeks but the waiting is the hard part 

xx 

Exactly the same here!

I have just received a letter with my ultrasound date of  the afternoon of 10th May, clashing with both my optician's appointment and my mother's dental appointment I was going to drive her to, but never mind!

The good news (I hope) is that ultrasound results are almost instantaneous. Do you have an ultrasound appointment yet? 

All the best xx

 

Hi

Glad you got your appointment, I haven't yet but wasn't referred til either late Friday after seeing the GP or Monday so not expecting it yet, I'm thinking of going for a private scan even if it's just reassurance but not sure 

xx

Let me know how you get on .... 
xx

Hi

My scan has come through as a soft tissue ultrasound on 12th May, not sure whether to keep private one for Saturday now.

You won't need two ultrasound scans, but it depends how worried you are ... can you wait until 12th May? Some of us have had the swollen lymph nodes for quite a few weeks, with no problem coming up on blood tests. Hope it will all be fine, whichever scan you attend xx

Hi

i think I would of been more relaxed if the second one on opposite side hadn't of come up 

Hi everyone. I've been following this post with interest/anxiety but up till now I've been too worried to post myself. I wanted to share my story in case it helps anyone else who's looking for answers now or in the future.
 

I had my first Covid (AZ) vaccine on 22/1/21 and two months later at the end of March I noticed a smooth rubbery mass above my left collarbone (same side I had vaccine in). it's quite big, a few cms across and I have no idea how long it has been there. I went to GP immediately who didn't think it was a lymph node and thought it was a lipoma. He arranged an ultrasound which isn't till 10 May. In the meantime I booked via private GP (who was very concerned) to see a private specialist (a Haemato-Oncologist) who was also very concerned. He told me I had a 'conglomerate of rubbery lymph nodes that were abnormal' and required urgent ultrasound/biopsy. Said he suspected lymphoma (he seemed more convinced of this as my Dad died of leukemia aged 66 not too long ago and he thought it could be related). I had not been too concerned before this as I found out about the Covid vaccine link and the pictures from the Spanish study look exactly the same as my lump. However, he said this would be the very last differential diagnosis on his list although he did acknowledge it's a common side effect. (For what it's worth I since had my second vaccine on the other side just so I could differentiate symptoms. Nothing has appeared there). 

I had the ultrasound today and the Dr who did it said it is definitely not lymph nodes and that she thinks it's a lipoma or some muscle. But nothing sinister and either way she was sure it was benign. Not lymphoma and not lymph nodes though. Sending me for MRI anyway so they can be sure what it is but not at all concerned. So I just wanted to reassure anyone that's worried that even if a specialist thinks it's worrying, a supraclavicular mass doesn't always have a bad outcome! I had some bloods done as well and haven't received results yet but did hear that the Dr would phone me if anything alarming came up. 
 

In the end my lump was probably not linked to Covid vaccine but I will post again after MRI in case anyone wants to know the final outcome/what they decide it is. 

I hope everyone gets good news soon and that the time passes quickly till your ultrasound scans. I know how worrying the waiting is.

All the best.  

I posted a few weeks ago about my swollen collarbone lymph node which appeared 4 days after the AZ jab on the same side. I had the jab on the 25th of March and the node enlarged on the 29th. It was initially quite big but as the weeks went by it gradually got smaller. Monday last was exactly a month since it appeared and it had gone down significantly by then and today I can hardly feel it at all. I'm now convinced it was the jab.

I went on a covid jab side effects group on fb from the states and alot of people are discussing this. It appears to be happening quite a bit as so many people are being vaccinated. It showed up in the trials too.

I decided to monitor mine for a few weeks  which doctors were advising people to do in the States and if it didn't go away then go to the docs.

My friend said it always happens to her after the flu jab and that it's her immune system kicking in strongly and thst it has happened when she's had the flu too.

I had to stop myself prodding it as it could make it uncomfortable.

I hope it doesn't happen with the next jab. I intend having it in my other arm and I'll see if it happens on the other side and also my arm muscle is still a tiny bit tender 5 weeks after having the jab. Has anyone else had that? Both a friend and a neighbour still have painful upper arm muscles. One had the jab in Feb!!

Regards 

Lxx