Borderline changes in cells and high risk HPV - scared

I've just had the results of my smear which says they've found borderline changes in Squamous cells and high risk HPV. I need to go back for a colposcopy still waiting for an appointment for this, but I'm terrified. Already I've convinced myself the worst and it's sending my anxiety through the roof. Ever since I've found out I keep thinking I'm getting pains in my stomach and when I finally have my appointment they will find something truely horrific. Everyone I talk too keeps saying "it will be fine" but they don't know that. I don't know what to do, any advice welcome. 

  • Yes I think once I receive my letter I'll feel a bit better because I know something is going to be investigated soon. I hope your appointment goes well on Thursday Nic, please do keep us updated if you don't mind. It's good hearing people's experiences good and bad so we can all support each other. I find it easier discussing with people I don't know tbh.

     

    Jdh1415 don't beat yourself up for delaying your smear the important thing is you've been now and can get everything looked into and dealt with. I keep trying to reassure myself as I've read cells can take 10-15 years to physically turn into cancer and that's why we need to get them sorted/monitored now. So fingers crossed for you at your appointment! They will usually be able to tell you more at the appointment before the biopsy so you've got a better idea too. 
     

    Please let me know how you both get on. I will be thinking of you and try to have a busy weekend to keep you occupied. 
     

    x  

  • Thanks Elle. Yes hopefully will at least know a little more at the appointment. You should ask your GP to chase the appointment if you don't yet have it. I contacted my GP as the letter said to discuss with them if needed and they said they would chase it up for me but ended up not needing to as got the letter through the next day for colposcopy. X

  • Yeah your right I think I might ring my doctors on Monday to try and get an telephone app with them. If anything just to discuss my results as I think getting the letter and doing your own research just makes it all worst. 
     

    Hopefully get the appointment soon though. X

  • I know it's easier said than done as people keep telling me the same but try not to worry. I think if you are worried speaking to your GP about the results is probably the best thing. I've read that much on this, forums, google, YouTube I could probably perform a colposcopy!! but to be honest it's given me no answers just made me think about it even more lol! I think the fact it's borderline is a good thing it's not any further on and the pains in your stomach is probably stress and worry, it's crazy what stress can do to your body. X

  • Hi Elle, just wanted to jump on and let you know about me. On my second ever smear I had a cin 3 (highest grade) reading. Knocked the wind clean out of me getting the letter. Within 2 weeks I was in for colposcopy and had the cells removed and sent for biopsy. Honestly I was so scared but everything came back fine. I was hpv negative though. Had my follow up smear and cell wise I am fine. A colposcopy is the best thing you can have as they see everything on your cervix! I have seen you have been told about the dye they use to show up cells and everything showing should get removed straight away and  you will be monitored a lot closer going forward so before anything can really get serious they will absolutely know about it. Good luck with the colposcopy and update if possible?! 
    xx

  • Hi! No thank you for passing on your experiences it does make all the difference hearing about positive outcomes! I think it's such a taboo subject that no one discusses it, it feels like the winds been knocked from you when you see the word abnormal cells on your letter! 
     

    I will update going forward, just hoping I get my appointment date soon but will chase in the week I think. 

    Thanks again and I'm glad your all in the clear now! X 

  • Had a letter through with my appointment now, it's not for another 4 weeks. So I suppose I just need to try and forget about it now and wait for the appointment, it will drive me crazy otherwise. 
     

    Hope all your appointments go okay this week to those that are having them, will be thinking about you. 
    X

  • Yeah I can imagine the wait being awful! I've only had to wait a few days and it's drove me insane. Look at it in a positive way though, as they are borderline changes they aren't concerned as much with these otherise they would be in more of a rush to ge get you in and remove them. They usually take quite a while to change to something more serious, think it's very very rare for them to progress that quickly so try not to drive yourself mad too much. Just keep busy. X

  • Yeah that's what I keep telling myself, thank you! I'm starting to feel better about it gradually but then I get pain in my back or legs and it panics me again, but I'm not sure if I'm just imagining it or because I'm over thinking bringing on various aches and pains etc. 
    I hope your appointment goes okay tomorrow. Would be good to hear how you get on and how you find everything. 

  • Hi,

     

    So.... I went, I had the dye on, doctor said the area was quite bad with severe cells but doesn't think it's the C but will need a biopsy to 100% rule out. She wanted to do LLETZ and biopsy but I completely freaked out... I think I've just worked myself up about the whole thing and my legs were just shaking I could not stay still. So will have to have general for LLETZ and biopsy. Come away feeling a right wimp but I just don't know what happened nothing even painful upto that point I just panicked. 
     

    I wanted to come back and update you, hopefully haven't put you off as it's just me being really wimpy!

     

    will receive a letter with the day to go in and have procedure said will be in next 2 weeks.