Subungual Melanoma

Hi all, 

 

Around 12 months ago I noticed a dark brown line appear suddenly on my nail. I thought nothing of it and just assumed it would grow out. 12 months later I have just received my appointment with plastic surgery for a biopsy (4 months after my original appointment mind) and I am absolutely terrified. The line is so thick and dark and matches all images related to melanoma of the nail. I feel sick to the stomach, I am only 23 and I'm expecting the absolute worst. I also have such bad anxiety and am terrified about the biopsy.. how long does it take? Is it painful etc? I hate being so in the dark. Any positive comments would be much appreciated x

Parents
  • Hi Libby,

    sorry to know about suspected lesion. It's very natural to feel anxious and worried. Let me assure you probability of melanoma diagnosis is very low. Still lower at your age.

    i had exactly similar story where I noted a black line on my toe nail which kept on growing for 6 months and my old nail is lifted. I was referred to a specialist and got it biopsied last week. Regarding biopsy, since it's on nail, it needs to be done by specialist. Injection will be painful but later procedure doesn't feel at all once Anasthesia sets in. My biopsy was done under local Anasthesia which is usually the procedure. I'm awaiting the results.
    it will be good to go prepared for the biopsy and it doesn't take more than an hour.

     Let's think positive that it's less likely to be a cancerous. Another thing that reassures me is noting it early. So well done for observing it and going to your doctor. In less likely situation,  where if it is malignant, it is god to detect it early and get treated asap. Hope you speak to someone - family/ friends / GP to help you cope with anxiety and be more positive about early diagnosis.

     It is hard. 

     My best wishes for you. Hope this helps. 
    kind regards,

    xxxx

  • Thank you so much for your lovely reply. I instantly feel a little bit better. I have lots of friends and family around me but they really don't know the right words to say to me which is understandable. It's hard for someone to understand when they aren't going through it themselves. Luckily there hasn't been much change in the line since I first noticed it and I'm otherwise extremely healthy with no other symptoms. Fingers crossed all will be okay and I'm sending well wishes your way too. Please keep me updated. We're in this together xxxx

  • Hi CCmed

    you are very welcome to join our chat. I am doing OK thanks. I understandd how you feel. I felt the same and now it seems I am going for repeat biopst for a line and my toenail.

    I know it sound silly to pay attention to small line on a nail but it is always better be safe than sorry. I have some medical backround and I understand the the benefits vs rosk of getting it evaluated.

    The chances of having sinister is very low, but if at all it is cancer, it is best to get it treated at the earliest.

    My best wishes for your biopsy.  Please let us know how it goes. It is very natural to feel nervous about it. Injection is pinful but proedure is not, you might have read it in earlier posts.

    Take care !

  • Hi healing7,

    thanks for your response. Do you know when you will get your biopsy ? Also sorry to hear you have to go through this all again. 
     

    I do think it is a very worrying time. I google so much and never realised you can have so many problems with toenails. 
     

    my doctor freaked me out because I honestly thought she would laugh at me and say it was fungal etc instead she told me she would red flag it to the hospital, I got my phone call a week later and app for 3 weeks. 
     

    I hate the thought of anyone touching my feet too lol! I will definitely keep you posted on how it goes

     

    take care!

  • Hi CCmed,

    yeah google can be scary. I have read some scientific papers and guidelines. But as far as I have read - if it is just a line which is unchanged for a long time, the reason to worry is still low. DO you have any other associated symptoms with the nail ?

    In my case - it was a new line, developed over a period of 6 months, which got thicker and my nail spliited - with a double nail and a line on my new nail as well. These signs make it bit more worrying.

    In my follow up appointment after biopsy, I realised she has not removed the complete nail, which was supposed to. And 2 specialists who evaluated my nail that day said I should go for repeat biopsy, i was fine with it till then. 

    I am not very much liking the thoght of going through it again. \Lets see!

    I hope things go well with you. It's always better to get it checked earlier.

    Keep me posted. Tc

  • Hi CCmead! 
     

    im doing okay thank you. Currently waiting for biopsy results!

     

    it's so normal to feel nervous. I had a line on my fingernail and felt so stupid going to the doctors with it, but I ended up having the nail removed for a biopsy! Any change in your body is never silly!

     

    please keep us uodated and let us know how you get on. All the best x

  • Hi Healing7,

    hope you are doing okay!

    just giving you an update, I received a letter saying that the dermatologist is calling me Monday 8th at 9.00am. A little bit worried as originally I was told that I would need to go into the hospital for an outpatient check up a month after the biopsy, however they've arranged a phone call just 2 weeks after :confused: 

    keeping my fingers crossed and trying to stay positive.

    all the best 

    libby x

  • Hi Libby 

    thanks for the update, I understand how it feels, I've been through this. Let me tell you conveying results over phone call is a good sign, doesn't seem anything to be worried. 
    they are supposed to give reports in 2 werks. They will anyways see you after a month for follow up. Alternatively you may call up and ask if they can share results with you.

     I'm waiting for telephone consultation before my another biopsy. Not very ideal really.

    tc. My best wishes for the normal reports.

    xxxx

  • Hello libbyacart and Healing7, did you find out what the issue was in the end? I am going through the same and have a dermatologist appointment coming up in the next 2 weeks or so. Very worried as you can imagine. 

  • Hey I hope you don't mind me joining,

    After a video popped up on TikTok (of all places) whereby a salon nail tech described how one of her clients had an unsual line on her finger I was quick to realise my partner has the same on his thumb. All information has lead to a possibly subungual melanoma and so I pushed for him to ring a doctor who asked for some photos (due to covid and no in person appointments) the doctor rang back and has since forwarded these to a dermatologist for closer inspection but could take 2/3 weeks "if they reply"!!!!! 
    I have made it clear he should follow up on this and push if or a biopsy regardless as it's too specific to be fungal/trauma. 
     

    I have managed to worry myself sick at the prospect of an unfavourable outcome and have since found myself here. I hope you are all doing well and wish you all the luck in your journeys with this! 
     

    Xxx

  • Hiya Melissa,

    So sorry for the late reply. How are things now? I had my biopsy results and they believe it to be melanonychia (benign pigment of the nail bed). I have a check up in about 3 months time as they are keeping a close eye it. But I was in the same position, worried sick and freightened of the biopsy, but having it done has eased so much anxiety! Like you say, he must push for it! It was about 5/6 months before I actually had the biopsy done from the initial appointment x

  • Hi Libby - I hope you're doing well. 
    I am having my fingernail removed too (very similar story to yours) and wondered how the pain after the surgery was? I'm having it done on a Friday morning and hope to still visit family on the weekend but worried about the pain - however don't want to just sit at home feeling sorry for myself! 
    And to stay distracted in the wait for the results! 
    Not looking forward to this at all - uffffff! 
    Thanks :) 

Reply
  • Hi Libby - I hope you're doing well. 
    I am having my fingernail removed too (very similar story to yours) and wondered how the pain after the surgery was? I'm having it done on a Friday morning and hope to still visit family on the weekend but worried about the pain - however don't want to just sit at home feeling sorry for myself! 
    And to stay distracted in the wait for the results! 
    Not looking forward to this at all - uffffff! 
    Thanks :) 

Children
  • Hiya Emma,

    Sorry to hear you are going through the same thing! I understand the anxiety. 
     

    So the removal itself was absolutely fine, the needle for anaesthetic goes into your finger rather than down your nail (I'm telling you this because the thought of a needle down my nail made me sick, but you might have already known that that's not the case lol). My finger went numb really quickly, I didn't feel a thing and the surgery team were AMAZING with calming my anxiety. We were chatting about what take aways we're going to treat our selves too as it was a Friday! The whole experience of having it removed wasn't anywhere near as bad as my mind convinced me it would be. The whole thing was over within half an hour max. 
     

    Now the anaesthetic did wear off almost immediately after the surgery, and my finger began to throb so make sure you take paracetamol and check with the nurses that they are happy for you to have it (should be ok). The paracetamol does help, but you really notice when it wears off so stock up and definitely take some before bed, as I often woke up because it was hurting. If paracetamol doesn't work for you, ask your pharmacist for something stronger. Keeping it elevated really helped too. 
     

    I'd definitely say to pop some paracetamol and go out to distract yourself, because it helped to take my mind off the pain and the results. 
     

    Sorry it's a lot, but I hope it helped!

    all the best with your procedure and praying that you get positive results x

  • Hi Libby. Honestly I can't thank you enough for replying. You've made me feel lots better. I didn't tell my husband I had messaged because didn't want to worry him with the c word because of the website. But I've just shared your response and we both feel a sense of relief. And I cannot wait to see my nephew the day after! Although I don't think picking him up and spinning him will happen as much as I want! ♥️♥️♥️

  • Hey [@emma_es]‍ 

    Just wanted to message to check how you were doing as I know how worrying it can be.

    have you had your biopsy yet?

    please let me know how you got on if you did.

    take care,

    libby

  • Hey Libby - thank you so so much. Means so much that you followed up

    I had it done on the 19th. The local was definitely the worst part - ugh! But then no pain at all. The doc had to go further down as more cells pigmented so put stitches in which I felt tug a bit. Been really happy the pain to be honest, all manageable with paracetamol and ibruprofen. Oh and holding an ice pack at the base of my finger worked a dream! I mean it wasn't pain free but better than I though. Had two dressing changes... it's quite unsightly haha but all for a reason hey. 

    I've got an appointment to go in on 23rd Dec. Spent the first 5 days or so post op feeling very pessimistic and negative. But now I'm in a much more pragmatic, let's see what happens mood. Silly things still creep in and make me nervous but I'm definitely more on the what will be, will be side. 

    We shall see! 

    Hope everything is well with you? x

  • Hello,

    thank you for getting back to me!

    I'm so glad the pain was okay for you. I wanted to tell you every detail of my procedure because it's so easy for our minds to convince us that it'll be horrendous and although it's not the most pleasant experience, it's now where near as bad as we expect! So I hope my post helped you. 
     

    I have all my fingers crossed for you that all is okay. Please update me to let me know. 
     

    I'm okay, a little bit nervous, as the line has grown back with my nail and changed slightly, so going in in a couple of weeks to have it looked at. Just praying I don't have to go through it all again, but like you say what will be will be!

    all the best,

    libby