Hello all,
Heres my blog, five years ago I was diagnosed with aggressive invasive breast cancer, two mastectomies and this Friday I’m having a phone consultation which they said would be my last one?
im looking for some positive advice regarding my current pelvic problems! 19 months ago the breast cancer team passed me onto the gynaecology department as scans identified I had and still do have a 7 cm by 7 cm adnexal mass which has been reported as a degenerating subserosal fibroid growing on the rear outside part of my womb. This has grown since first scan in 2018. Whilst under the gynaecologist I’ve had to date ca125 tests x 3 times, 3 ultra sounds most recent one done a month ago in October 2020 and a CT scan February 2020. All have said nothing sinister despite growth and I’m 58 no periods for 6 years? Following the recent ultrasound internal and on the belly has shown new things which are bilateral multioculared cystic lesions plus the fibroid I knew about, these cystic lesions have never been mentioned on previous scans . My ca125 is over the cut off also and my RMI result is 333 the cut off being 250 as quoted in NICE guidelines and the pathways that should be taken!!, I had been put in for a routine mri scan but following my chasing today this scan has been marked as now urgent!! This last 19 months I’ve had to chase so much regarding my pelvic health as the consultant I’m under I’ve never seen but keep receiving his letters which contradict previous ones making the whole experience as utter mind worrying angst. I feel that during this last 19 months I have been neglected in parts and I now am very anxious that I could well have ovarian cancer when if they had acted previously due to my age etc things may not have become possibly a negative outcome. Has anyone been fobbed off and been through this experience, Pals had to help me last December as I was put in for an urgent mri then but it was rejected by a radiologist because 6 months prior I had an mri scan whilst the breast unit were checking things. The fight was on again and because of Pals they booked me in for a CT scan which just followed by a letter saying nothing sinister. I’m very bloated, I look pregnant, lots of pelvic cramps and discomfort in my back passage, I know something has changed with my insides but no one is doing anything curative, just being messed about. Thank you for any advice or similar experiences. Oooh by the way the consultant I’m under despite never seeing him only works part time and never seems to be in so there is no one picking up the pieces and I feel I’m falling through the holes in the nhs system xxxx
