Hi all,
This is my first post here. I'm 32 with two young children. An 8 year old and 3 year old. I've been on the cancer pathway since 6th August and still don't have a diagnosis.
I suffered with ongoing chest pain in July and eventually had a CT scan in August. CT showed a 5cm mass next to my aorta and pulmonary artery. I've had a x2 MRI scans, PET-CT with SUV of 2.2 and biopsies via EBUS that were not able to confirm whether tumour was malignant or benign.
I'm so fed up. I feel like my life has been on hold for so long not knowing what the future holds.
Im currently waiting to hear when my surgery will go ahead. I will be having a major surgery via thoracotomy with a thoracic surgeon and heart surgeon. I just feel it's so unfair that I still don't have any answers. I've had so many tests and I still don't have a surgery date. I will only know if this tumour is cancerous once it's been removed. I'm just really struggling with it all and feel I have no support. I just don't know what else to do. I don't know how much longer I can cope with all this unknown. My anxiety is through the roof. Everyday I feel like I'm on edge waiting for a letter or phone call with what's going to happen next. I had an MRI last week to check for tumour growth so I'm currently waiting for the results of that.
I'm just so depressed and I don't know where to turn anymore. I have the prospect of having cancer- doctors have said it could be Lymphoma, malignant neurogenic tumour or some sort of sarcoma. I also have to deal with the fact that I'm going to be having risky surgery due to the tumours location. I just don't know how to get through or what to do anymore
x
