Ovarian Growth

Hi

Feel like a complete fake writing this after reading all these post but here goes. I have had bowel problems, bloating , aches etc and finally had an ultrasound on my stomach and "bits". The next morning I got a call from the docs to say that there was some sort of a cyst the size of a golf ball on one of my ovaries. He can't tell too much as it's unclear but that he had already referred me to a gynaecologist, the nurse rang even as I was on the phone to the docs to arrange a blood test ASAP, the day after. 
now it's a waiting game, my mind is whirring, I am over 50 and in menopause. Hubby isn't sleeping and I'm trying to stay all positive. I know I am over reacting but....

  • I'm doing good - I have my surgery on the 6th of January. 

    Having a hysterectomy, gall bladder removed, lymph nodes and fatty tissue. 

    This seems a lot but I'm pretty positive and looking forward to the recovery and not focusing on the operation to much. There is so much that I do not know and there are a lot of tests to go. 

    But its Christmas and I'm going to enjoy Christmas with my family. 

    How are you doing

  • Good to hear you have a date and it's sooner rather than later. Mine is booked for mid Feb which seems forever away, I've had a few calls from the hospital this week about scans and previous, each time I ask about cancellations to see if it can be brought forward! 
    I'm glad we can now try and have a normal (ish) Christmas for our girls sake! 
    During my meeting with the consultant last week they went through the op, they will also run tests to see if it's malignant or not whilst I'm in theatre - was quite impressed with this! Sounds a long traumatic op and to be honest is scaring the life out of me. Last time I was out to sleep I was 12yrs old to have a tooth taken out!! But it will be worth it to get this thing out of me! 
    Enjoy your Christmas as much as you can and good luck for the 6th Jan. Keep us updated with your progress if you can xxx

  • Thanks for the message, Yes enjoy Christmas and the time you have. 

    I have been focusing on the recovery and what I can do to help myself - I can't do anything about the operation just trust the surgeons to do their jobs - and I have a great team.

    I am trying some relaxation techniques - and yoga. Hopefully, this will keep me calmer as we approach surgery.  I have never had an operation so there is much I don't know. 

    The worst for me is not being able to have visitors my husband is amazing and so supportive so that is going to be hard.

    But I'm looking forward to this being over and getting on with life again. 

    I will message when i can as i think to know people are the other side of surgery is really important.  Take care 

  •  

    I have just discovered my surgery has been cancelled - I have a large ovarian mass - unknown if this is cancer. 

    Devistated by this - I’m outside the number of days for treatment - no idea if this is life threatening or not - no idea when anyone from the hospital will be in contact. 

    I feel so alone trying to deal with all these feelings of anxiety - my mother and grandmother died in early 50’s of ovarian cancer. I just feel totally out of control, Not sure what I do about work, do I go back -my head is just all over the place and I am now experiencing pain. Emotionally and physically struggling. 

    Im also finding myself to be really angry - which is so unlike me- especially at people breaking Covid rules as I feel they are responsible for my lack of surgery.. 

    Everything seems like a mess - and my positivity and resilience is on the floor. 

     

  • Oh no Pearl20 that's devastating news! Have they given you a reason for the cancellation? Have they given you a new date? I would either try and call your consultant or your oncology nurse on Monday for answers, don't wait for them to call you! 
    I was only thinking of you yesterday!

    With regards to work, are you working from home? If so I would go back, until you know more! Your cancellation may only be a delay of a few days or so. Or wait until you have spoken to someone on Monday who can tell you more. 

    I am in the same position as you with my diagnosis, not knowing what it is or what damage it is doing whilst I wait for my op, I am terrified of my op being delayed. I have my pre op on Monday and final (hopefully) ct scan Tuesday and then it's just a waiting game - again. My pain is getting worse and popping pills all the time! 
    Chin up lovely, make it your mission on Monday to get answers or find a new plan of action. You will get your surgery, it's just a case of when. 
    Let me know how you get on. 
    Thinking of you xx

  • Thanks for your response. 

     

    The Hospital is over run with covid cases - the ward I was going to is now a covid ward. 

    No new date, they have said the operation won’t happen at this hospital but they don’t know where., they did say it won’t be for the next couple of weeks at least  - I’m normally so positive but this has hit me hard. My operation was on the 6th and I had prepared myself so well emotionally and physically. 

    Hope that I will bounce back at some point soon. 

    Sorry to hear your pain is worst - I feel like I’m in the end stages of pregnancy ( which I’m not) uncomfortable and unable to find a good position, heavyness, tired, emotional and not eating.

     

    Hopefully your hospital will fair better, wouldn’t wish this on anyone. 

     

     

     

  • Nightmare, I had a feeling you were going to say because of Covid! It's a terrible thing to happen especially so close to your op date. Fingers crossed they let you know soon, they might do it in another hospital within their trust, maybe even outside of your area, not ideal I know! 
    I'm scared this is going to happen to mine but I've still got over a month to go so keeping everything crossed! 
    Big hugs lovely, I know it can't be easy for you at the moment xx

  • I hope you got your op in the end

  • Really lovely to hear from you. 

     

    I had an amazing experience in the end - I went to a private hospital with my NHS surgeon and was really taken care of.

    Turned out I had stage 3 cancer and Bracca 1 gene. I have just finished Chemo and about to start some maintenance medication. My outcomes look good and I remain really positive about the future. 

    It was so hard back in January and I'm sure getting my surgery when I did was life-changing for me.

    Hope you are doing well.  

    I have had a marvellous team supporting me and I'm due to have some counselling - I haven't really been able to face I have had cancer. just getting the treatment done has been my focus - but I think healing is also about mental health as well as physical.  I have lots of questions about my diagnosis and things that were said to me pre-op. just so I can understand more

    Thanks for the message.