Worried - being checked for bowel cancer

Hi all, just after some other experiences. My mum was diagnosed with bowel cancer when she was 37. She recovered from this thankfully but sadly passed away at only 59 from liver cancer. For the past few months every so often I have had bright red blood after a bowel movement on the toilet paper. I assumed it was just piles as I have had three children. I also started to become extremely fatigued - not just really tired - literally not being able to keep my eyes open on the afternoon or still feeling exhausted in the morning after 9 hours sleep. Again, I'm a working mum with three young children so just thought it's normal. I also started to have a tender lower abdomen (when my youngest jumps on my lap I'm gritting my teeth) I didn't really notice any bowel habit changes because, again, I'm a busy mum rushing on the school run/to work/children's clubs etc. But when I look back, my stools have become softer and I don't always feel I've completely emptied my bowels, sometimes only being able to go a little bit. I've also lost weight unintentionally - not anything significant- but enough for people to keep saying 'wow you've lost weight' (this would be great if it weren't coupled with the other symptoms!!) Anyway a couple of weeks ago after more blood on toilet paper  I thought enough is enough I need to get checked then if it's piles I can get it sorted. I had a digital rectal examination and she could find no evidence of piles. She felt my tummy and she can feel some sort of mass / enlarged organ where it's tender. She said maybe it's just an extra large uterus but given everything else and my family history it needs investigating. So shes referred me for an ultrasound of my abdomen and blood test. I had the blood test on Tuesday and I called yesterday for the results and they told me a clinician has reviewed and recommends I make an appointment to discuss with GP. The receptionist did say that she's spoken to the doctor who reviewed and said it's not major urgent, so at least I'm not severely anaemic, which the doctor said would mean urgent colonoscopy. However there's obviously some abnormalities there and I have to wait until Thursday to find out. I haven't had an ultrasound appointment through yet, she said it's usually quite quick though. So basically I wondered if anyone else had been in a similar situation? I'm still (maybe naively) convinced it's not bowel cancer, I am 37 and luck would really be against us if I were to have it at exactly the same age as my mum, but then again my symptoms are worrying. 
Thanks so much for taking the time to read my essay and thank you if you got to the end!!

 

  • Hello, 

     

    I didn't want to read your post and not reply, as our situations are quite similar.  

    My mum had anal cancer, and just go the all clear in April. 

    I just gave birth in November,  and had my first real period in February. A few days before,  I bled quite heavily from behind,  and in my stools. Every month since then I have bled from behind a week before my period,  or actually during. I have lower left pain constantly, and am now suffering with fatigue. 

    I am having a flexi sigmoidoscopy on Monday and  I'm so so nervous. Like you I also think, surely me and my mum couldn't have both had the same (ish) cancer at the same time? 

    Are your symptoms constant? 

     

    I know my reply hasn't been 'helpful' but... your not alone.

     

    X

     

  • Thank you so much for your reply, it's definitely helpful just to know others are in a similar situation. Your mind goes into overdrive when you don't know. It's highly like to be something other than cancer but I think when you get 'in the system' the reality that it *could* be sinks in.

     

    I am so pleased to hear that your mum has been given the all clear. What a relief for you especially with a baby, and massive congratulations on the birth of your baby. 
     

    Our symptoms are very similar and it's good to hear you are being thoroughly checked. Please do let me know the outcome of Monday, I assume you have to do prep for it? 
     

    Myself and my siblings were told we'd start to be screened from 50 because of the age of mums diagnosis, however to me that seems very late considering mum was 37, but I'm not an expert lol. 
     

    I do have my symptoms all the time except for the blood that's fee and far between but I'd say once or twice a month and it's not just a drop. I 100% expected her to find piles and send me on my way with some treatment! Part of me is wondering if it could still be that but higher up internally which she wouldn't have been able to feel?! I don't know, there's not much point in speculating I guess.

     

    Do you have your symptoms all the time? 
     

    Thanks again for your reply x 

  • Oh god my mind has raced to every worse case scenario this week. And I am pooing myself (excuse the pun ha. )

    I have to give myself an enema Monday morning which I'm dreading. 

    Even typing it now makes me get bad guts!! 

     

    Yeah I thought the same. When I went to the GP back on feb I thought she was going to say that I had piles and to keep an eye. Then she said that because of my age she wasn't going refer me. And as my mums anal cancer didnt run in families, a colonoscopy wasn't necessary. I felt really unsettled so i went back and see a different GP. 

    This GP felt my stomach where I said hurt, and sent me for 2 ultrasounds. One normal over belly one. And one internal. Well this sent me into overdrive because I thought he felt something. Those scans came back clear, but only see part of the colon.. so they referred me for a flexi sigmoidoscopy.  Then lockdown.. 

    Last week I called the hospital to see when my appointment would be, they said I wasn't classed as urgent and they had a back log..  Well she must have thought I was crazy because I was crying, saying I am bleeding from behind etc etc, so here we are, they squeezed me in. 

     

    It has made me really paranoid. I spend all night researching.. 

    I know there can be a number of things wrong..  but of course, our mind heads straight to the worse case! 

     

    I'm sorry about your mum  

     

    I have read that immediate family should have a colonoscopy 10 years earlier than the realitve was when they were diagnosed. 

     

    I have the lower left pain/ache daily. Its almost at my hip/ovary.  And the bleeding is always during ovulation/period, and on 2 occasions it has had clots/mucus.  

    The fatigue is really bad, but I have an 8 year old and a 9 month old, plus this worry so i put it down to that? 

     

    I know I'm going on, I'm sorry. It's just (nice) to talk to someone who understands  x 

     

    Also, why are you having an ultrasound and not a colonoscopy?could you see a different GP and say your symptoms are persistent and you need a colonoscopy under the 2 week pathway because of your mum! Bloody lockdown has alot to answer to but that's another subject!! I think that's your best bet? As an ultrasound cant see all of the colon xx

     

  • Hello, I'm so so sorry I haven't replied until now, the weekend just ran away with me. Well done you for being persistent and seeing another GP. How are you feeling about tomorrow? Silly question really but I hope you aren't feeling too nervous, at least hopefully it will give you some answers. Am I right in thinking that with what you're having they just see a certain part of the colon? Will you let me know how you get on tomorrow? Will be keeping everything crossed for you

     

    I thought the same about the ultrasound I assumed I'd be sent for colonoscopy as I thought that's the only way to diagnose bowel cancer? She did mention the mass she could feel could be an extra large uterus?! So maybe that is what she wants to rule out first? I'll ask her on Thursday when I get my bloods. 
     

    I will think of you tomorrow and hope it's all clear for you xx