Hi, i am going through same experience as you

My simptoms started earlier-in March. Had absolutely same symptoms - night sweats, weakness, loss of appetite , lost 10 kg in 1 month, aching all body around, weeing blood. GP gave me 3 course of antibiotics for throat pain but with no result. After calling and complaining every single week with complains he decided to refere me to the ENT consultant in July. I had phone consultation then ENT referred me to MRI scan which revealed enlarged lymph nodes. I am confused now as they told me I need follow up appointment with the ENT for endoscopy in the nose +throat, but certainly it would not make any difference for the lymph nodes.(due to ccovid the procedure at the moment can not be done untiluunforeseen future). I went to private gynaecologist--found uterine fibroid, (don't know if hormonal changes can affect the lymph nodes but I guess not) The last blood test done back in my country in June had so many pathologically high levels of white, red blood cells and many more. GP here quite unhelpful-says is not point to refer me for blood test as he has already handed me out to the ENT and is his job to investigate my problem. I feel like there must be something wrong with the blood as there only shows that things are outside normal levels, but I need keep pushing quite hard the GP for the blood test.

It all has put me in me in so much stress and on the top is happening in the Peak of the pandemic. Things are really slow and the waiting just adds more to the stress.

Keep me. Updated pls, i had no idea enlarged lymph nodes need be investigate and none of the GP or ENT told me this either. Now I need to keep pushing for answers what is going to happen with the node. 

Don't know what we will go through but I wish all best of luck to me, you and all the people out there who need help. 

Zoe its good you are getting the CT scan! I am pushing for one too over symptoms I am having. I think a CT scan can show if it is lymphoma, if it is clear that will be a really good sign. I am currently worried sick about lymphoma too :cry:

Anash, I am sorry you are struggling with issues too! Are you able to get referred to a haematologist? 

Hi both!

Anash that sounds awful I'm sorry to hear what you're going through. I would mention doing a blood test to the ENT. At my first consultation with the ENT they did the  endoscopy in my nose and throat and they then sent me for another blood test the same day. It's definitely worth pushing them for if you can!

Smoore what has your experience been like so far? Do you think they will give you a CT scan? I really hope something does show up on the scan so I can just get myself sorted. I'm not sure what they would do next if nothing shows on the scan!

Hi zoe.

So sorry your going through this and I'm not sure what the doctor means by there being nothing to biopsy?

I was diagnosed with lymphoma in january 2020 after going backwards and forwards to my GP for months!!!

If your having a CT scan it will absolutely show up any enlarged lymph nodes xx

Zoe do you know when your scan will be? 

I have had fevers and chills at night for over 15 months with no answer. Im worried sick its lymphoma. I wake from my sleep sweating and hot but I feel freezing and my whole body is shivering. I did see a haematologist last year and got lots of bloods done and a chest xray and was signed off. But my symptoms have got worse, I wake most nights shaking. Its awful :cry: the doctor is currently emailing the haematologist to see what they think and if they think this warrants a scan. I will not settle without one. I have health anxiety and have googled this extensively over the last year. Im convinced its lymphoma :cry:

Hi all,

Hayley I'm not sure what they meant by there's nothing to biopsy either. I can find anything about it online either which is frustrating! Thank you for saying about the scan though, that gives me a bit more confidence :)
 

I'm sorry to hear that you have Lymphoma. How were you diagnosed with it and how's your treatment process going? I hope treatment is going well for you and you're not feeling too ill!

Smoore I'm not sure when the CT scan will be yet. The ENT said they requested it on an urgent basis so hopefully within the next week or so, just waiting on the letter to come through still. 
 

I'm so sorry to hear that you've been suffering with the symptoms for such a long time the night sweats are awful :( Yes I would push your GP for a scan as much as possible especially because your symptoms are still there. I'm very surprised they haven't done one yet for you!

Please do keep me updated on whether you get the scan, fingers crossed! :) 

Hi smore921, just wondering how your doing been followinf yours and davew's old post from last year, did you ever hear from him again after last august? Hope your doing well

Hi :happy: 

I havent heard from Dave no, I just checked and he hasnt been online since October last year. So hopefully he is doing well and has moved on from this. 

I'm the same, still waiting to hear from the haematologist to see what they want to do :neutral:

How are you?

Was hoping you would have improved by now, hopfully they can get the ball rolling with finding out whats up with you as i know it is so stressful. Ive been experiencing the exact same symptoms as Dave as well as other family members, starting tk think its covid. 
 

Anyways ive been in and out of a&e with this pain, had neck and spleen ultrasounds booked in for chest aswell, had multiple chest x rays and nothing. Have had multiple blood tests and now being tested for different infectious deseases. Hve been told could possibly be tb or even lyme disease as i have spent long periods of time down the new forest. (Apparently riffe with infected ticks). Have an appointment on wednesday with my doctor, to dicuss what direction next if blood tests come back clear.

please keep me updated about your health and keep an eye out for anyone with similar symptoms as me and dave.

greatly appreciated

jm