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Afraid to get CT scan results

Chloeisabella
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Hi everyone

last year I started to get pain in my joints and was tested for rheumatoid arthritis. I had blood tests and a chest X-ray showed a shadow on my lung. Since then I've had a CT SCAN and a PET scan but still no definitive results. They brought me in for a lung biopsy but cancelled it on the day. They said they would bring me back in a few months for a CT scan which took place last week. No results yet so I phoned the respiratory dept today and they said an appointment had been made with the consultant on 14th September. I am really scared because I feel if it was a good result they would have written or phoned especially with the pandemic. This has gone on noe for 6 months and I'm just about finished with all this anxiety. I am an ex smoker since 1990 and try to keep fit yoga cycling etc. I'd  be grateful for any advice 

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    I empathise with you - waiting is the worst.  My journey is a lot shorter but I did have a telephone consultation regarding my problem and was advised that next time he would see me face to face - still waiting for a diagnosis so perhaps that's just the way the system works,  I've had four different tests but am still waiting for the results of three of them.  I have been advised that the results have come through and the delay in advising me is caused by the consultant's admin backlog.  A bit frustrating knowing that my anxiety is prolonged by timing of staff rotas but has taught me that you can't second guess outcome based on method of delivery and that delays are just that ....   Wishing you all the best xx 

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    Hi, 

    how did the phone call go regarding your CT results? I hope that you now have some answers. The anxiety when waiting is something I had no idea would be so overwhelming. Although I feel physically well, mentally I feel like I've been in a bubble for the last 8/9 weeks. I am still at the diagnosis stage and while there is still hope that my mass is benign and that I will "just" need major surgery to remove it, it is the not knowing that is the hard bit. Whatever it is, we will deal with together - it's just when will know what "it" is?

    Take care

    Sharon 

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