CIN3 Treatment

I went to my GP to ask about HRT, because I'd been feeling a bit blurggghhh! She said I'd need another coil and that meant a smear test as well, and I probably wouldn't have bothered with another smear to be honest. I'm 52, I've had a few smear tests over the years and nothing abnormal ever showed up. I expected to just go along for a coil and HRT, but I got a letter saying my smear test had shown some abnormalities, and I was invited for a colopscopy. I went along thinking it wasn't a big deal, and had the colopscopy. I was told at the time that they could see some abnormality, and they took a biopsy. A couple of weeks later I got a letter saying the biopsy had shown that I needed further investigation, and an appointment was made for another colopscopy. At that appointment I had treatment to remove the abnormal cells. I feel stupid now, but I didn't ask how they did it, but they attached the pad to my leg and I guess it was the laser treatment. I went away without worrying much, I thought it was a small thing and easily sorted. Two weeks later I got a letter saying I had to go back for further investigation. I was told the sample they had sent away possibly showed an incomplete incision, and there could still be abnormal cells but the abnormal cells left behind might have come away in the meantime with the artificial scab they put on . I still didn't ask! Then Covid happened and I didn't hear anything for about 8 weeks, when I got another letter saying I should go back as there were still abnormal cells. I had another colopscopy and further treatment (laser again I think!) to remove abnormal cells. I still can't believe I didn't ask what treatment I was having. I think I still believed it was all nothing and it didn't really matter. Another fortnight went by and ditto the previous appointment. There were still abnormalities. I had googled a bit about cervical cancer by then, and I asked about more definite treatment, like hysterectomy. They said that was something to definitely talk about next time, but was told with a smile that everything could come back normal. I got another letter today saying I had another incomplete incision, and an appointment for an assessment and to discuss further treatment. Although I know that none of this means I have cancer, I'm really scared. The treatment obviously isn't working, the abnormal cells have not been successfully removed. Also, if they want to try again, I'm scared. It was really painful last time, and they said it hurt more because they were working on scar tissue. I keep reading upbeat stories on here, but we need to be honest as well. This is scary, and can be a bit painful. I think I posted this because I wanted to hear lots of people reply and tell me their happy endings, because I am scared, but I also want to say that the painful bit only lasted a minute, and I've felt worse stubbing my toe in the dark. I am scared, though, and would love to hear from anyone else who has had treatment a few times with unsuccessful results. PS Just went to post this and not sure where I should post it, sorry if it's in the wrong place! xx

  • Hello EdnaB,

    I'm sorry you're feeling scared. As you say, abnormal cells are not the same as cancer and it's great that they are being monitored. It is possible that they could go back to normal but to feel more prepared for future appointments, it's a good idea to write down questions for your consultant so they can address any concerns you have. There is some information on treatment of abnormal cells here. While it can be tempting to look for answers online, this can end up increasing anxiety rather than making you feel better.

    Best wishes,

    Moderator Anastasia