Re-Referral to Breast Clinic

Hi,

Sorry for two posts in one day! I'm waiting on being checked for cancer in both my cervix and breasts (symptoms in both areas), and I'm really worried... I'm sorry the post is so long, I'm rubbish at explaining things

I've just moved town into my new house with my fiancé. It should be such a lovely time, but I'm just too anxious to enjoy it the way I should be. I've been to the breast clinic twice now, and awaiting my third visit nervously! The first time I had clear nipple discharge from both breasts when I pressed my breasts/nipples. This turned out to be the result of raised prolactin levels due to long term use of the antipsychotic risperidone - I came off it recently because I just couldn't deal with the discharge worries / breast tenderness anymore. I haven't noticed any discharge in a while, but then again, i haven't really been poking at them to check for it.

Around Christmas time last year I found a lump in my right breast - it was relatively small but elongated and painful, and moved freely when I pushed against it with my finger. I saw my GP who thought it was likely just a fibroadenoma, but to be sure (and to put my mind at ease since she knew I had anxiety) she referred me to the breast clinic. The doctor felt both my breasts and said what he could feel was called "fibrocystic changes", probably due to my hormones. He discharged me telling me it was normal, nothing needed done, and I wasn't to worry.

So a few months later that lump stayed the same size etc, but moved into the upper centre of my breast. Worried, I phoned my GP, who said it was likely just the fibrocystic area moving around and I wasn't to worry. Despite regular breast pain/tenderness in both breasts, I was ok for another couple of months until I was lying on my back one night and noticed a large portion of my right breast was now hard and lumpy, if that makes sense? If you imagine the nipple as the centre of a clock, the area of hardness was from about 10 o'clock to 1 o'clock. It's hard to describe... it had a definite clear ridge where it ended at the 1 o'clock side, but at the 10 o'clock side it kind of tapered down into normal breast tissue so it was hard to distinguish where it ended. The big hard lump isn't painful, but I also have one or two little lumps on the underside of my right breast that are quite tender. Shortly after, I also noticed I have the same little tender lumpy bits on the underside of my left breast too, and a small roundish lump on the upperside.

Of course I was frantic, so I went to my GP (it was my new GP, given we had moved by that point). She felt it and said she thought it was likely just fibrocystic changes again, especially given it was in both breasts because breast cancer in both breasts is rare. Like my last GP, she referred my to the breast clinic again just to make sure.

To be honest, I struggled to trust the breast clinic last time because the doctor literally just felt my breast for less than a minute and apparently had a certain diagnosis, with no other tests being done. I know they are the experts, I'm probably just being anxious. Has anyone else experienced this - multiple lumps in both breasts, tenderness etc? Did it turn out to be just fibrocystic or another benign thing, or do you think this really is something to worry about?

I don't know if there is a chance all this (the breast issues and the cervical/bleeding issues) are all linked to hormones. I've only just recovered from 11 years of anorexia/bulimia - being so underweight and unwell stunted my development. I hit a healthy weight in November last year and since then puberty seems to have resumed - at the age of bloody 22. Acne, mood swings, body changes... I've suddenly gone from having a figure like an adolescent boy to actually looking like a woman which is rather distressing in it's own right since I spent so long being used to having no hips/chest/butt etc. Part of me hopes the breast and cervix problems are all just hormone related, but I don't know if that's even possible or just wishful thinking

Any help would be much appreciated x

  • Hello Tabby.Mc, 

    I just wanted to welcome you to our forum. I hope you won't have to wait too long to be seen again at the breast clinic. I know it is really hard but try not to worry too much or anticipate what it might be. It's good that you have seen the doctor and that both your breast and cervical issues are being investigated. The best thing to do to avoid thinking too much about this is to keep busy and distracted if you can and avoid looking things up online. I can imagine it is hard for you to do this at the moment but it will help you feel a little less anxious. 

    I hope you will also hear from others here who have been through all this before and that they will be along soon to share their story with you. 

    Keeping everything crossed for you that everything turns out fine. 

    Best wishes, 

    Lucie, Cancer Chat Moderator