Possible lymphoma

Hi all, 

I have had a swollen neck and lymphoid since march and also just generally feeling low. But due to lockdown I didn't go to the doctors because clearly there was other people very much worse off than me. (Covid)  So I just left it. But due to the swelling, which is extremely uncomfortable (not painful) and now my arm pit is swollen, I decided to go to the doctors.  They referred me to the ENT unit for a two week priority to check my lymphoids.  I'm having an ultrasound tomorrow and possible biopsy and I'm hoping for the best......but my question is, does an ultrasound always detect lymphoma?  I'm worries,  but I don't want to come across a  hypochondriact if they say , its all fine and they don't do a biopsy. Because I know me, I know that something isn't right. What should I do if they say the ultrasound is clear? I've seen forums,  where people have said its been missed and then diagnosed later down the line. I have two children at home and I work full time, my husband works away during the week, and I just want to feel normal again, after months of not. Should I ask for a biopsy to make sure? Or should I listen to their advice?  

 

Many thanks for you times. X

  • Hi

     

    I'm sorry you are going through this, I can totally relate, I could have written your post, found a lump during lockdown in my neck, didnt want to bother anyone, went to the doctor just over a week ago and got rushed straight for xray then CT, had a biopsy today, now just waiting. Its terrifying and overwhelming and every doctor has said they think its definitely lymphoma. I hope in your case it's not. From what I can gather a biopsy is the only definitive diagnosis tool, so I would let the doctors ho ahead and take it if they feel it necessary.

     

    Sorry you are going through this too. 

  • Oh wow, we both have a similar story. I pray yours comes back negative,  I really do. 

    Can I ask, do you have any other symptoms?  Or is it just the lump? How big is yours, if you don't mind me asking? Mine, is from the end of my jaw just below my ear, and goes diagonal and touches my windpipe.  About a finger length.  

    I hope you get your results quickly.  The waiting is the worst bit isnt it. :( 

    Xx

  • Hey!! 
     

    if you can I'd ask them to do a biopsy if they say it's not necessary I would ask them to explain exactly why they don't feel it's necessary. I've got quite a few lymph nodes in my neck and collarbone and armpit none of them are really bigger than a cm especially in diameter anyways so they've just told me it's fine and 8 months later it's still ruining my life stressing my mental health !! So to put your mind at ease explain to them your worries! Fingers crossed for you xxx

  • The waiting is so horrid.

     

    I have no other symptoms but my chest xray and CT scan showed swollen lymph nodes in my lungs too.

     

    The biggest one I can feel is about 2cm, that's the one he biopsies today, it's on my collar bone. He took 3 good samples and said they might have provisional results thursday, but it would need to go off a d be double checked in Leeds which could take a week. I'm meeting my specialist again on monday, maybe they will tell me then ‍♀️ I'm pretty sure that they gonna say it is lymphoma and I will get started on chemo asap. So scary...I have a toddler at home and I worry about him through all this. My heads a mess.

     

    How are you finding the appointments etc at the moment...not nice having to ho alone because of covid? What time is your appointment tomorrow? I would imagine if you are on the two week pathway they will probably go ahead with the biopsy? But I'm definitely no expert. Hope it all goes ok sending lots of positive vibes xx

  • Thank you very much. All the best to you hun. X

  • Oh gosh you must be so scared.  I have two children at home and my oldest son, keeps coming up to me and saying, are you OK mum? You don't look it. I think he can see worry and stress. I try not to when they're around but I guess it just shows, when something is on your mind. I really hope that you get good news on Monday. Got everything crossed for you. 

    My appointment is at 12.30 tomorrow.  It's such a shame no one can go with us isn't  it. Did your biopsy hurt? 

    They're being really quick with you, and that's really good. Take the positives from it hun. X

  • I bet you feel like you still have un answerd questions.  When you feel something in your body and its not quite normal,  it still plays on your mind even if you have had news to say its not the worst. I can relate to this from passed problems. Always here if you want to chat. X

  • Aww bless your son. I think they can just feel our worry without us saying a word, my little un had a nightmare the other night screaming out mummy's gone...it broke my heart.

     

    Hooe it goes well...please keep me posted. The biopsy was a little sore, I had local anaesthetic so it was numbed and I could feel pulling pushing (a bit like having dental work) I found it hard going on my own (I'm a big wimp) but the nurses and doctors have all been so wonderful. And yes it's great that things are moving so fast for us both, for that I am very thankful

     

    Thank you for you well wishes...it actually really helps chatting it through with someone who can relate.

    How is your husband with it all?

     

    Xx

  • Oh bless your little one. That's so sad. :( 

    It actually does help talking about it. So thank you. 

    My husband is putting on a brave face. I think, if I'm honest he is trying to block it out. I lost my best friend to cancer which was my grandad and my husband lost his mum to cancer.  Both last year, which really was crap. And now we have another family member going through chemo. So I think he is worried in silence but being normal around me, keeping my spirits up. Hopefully I get good news and we can all move on. But the way our luck is, it doesn't look good. 

     

    How's your support at home? Xx

  • I'm so sorry to hear about your grandad and MIL that's sounds like a really rough year for you. Hopefully your luck is changing and all of this will soon be a distant memory. How are you feeling today?

     

    My husband is doing his best, though he is scared too and I have a really great support network around me, I am very lucky indeed.

     

    Thinking of you today, hopefully it all goes great