Just went through the song and dance of resetting my password just so I can say my symptoms were nearly identical  - hemrorrhagic cysts, very high CA125 (I think it was 290), same age even - and it was endometriosis.  At the time the other possible diagnosis was a mucinous cystadenoma; my gp said he was 95% sure it wasn't cancer and the gyn/onc said he was 99% sure.  So they could be thinking of a benign or borderline something  else, not necessarily cancer.  One of the cysts was 11 cm.  Not pleasant, but benign; the only reason I have an account here was an unrelated thankfully false alarm!  (And then my thyroid went rogue on me but I'm not even sure if I posted here about that!)

Endo can definitely make you feel not right.  I didn't realize just how unpleasant it was until I had a hysterectomy (I had an irregular fibroid that was potentially a sarcoma, so I just opted to have the whole mess out at once) and had all of it removed.  I had a fibroid, an ovarian endometrioma and endometriosis all the way to my bowels.  Once it was all out I could actually feel its absence for a few days.  I almost cried after the surgery when I realized that.  I don't think anything has ever felt  so good.  Endo can be hard to diagnose but it can be treated or cured depending on what route you choose.  

There's a wonderful site call hystersisters that got me through my surgeries and other treatment attemps - while it's nominally for people having hysterectomies and that's a big part of the site, people in cancer diagnosis limbo show up pretty often and everyone is super nice.  I met some long-term ovarian cancer survivors there so they may be able to answer any specific questions you have.  Not that I think you have it  - if I had any money I'd bet it all on this being endometriosis.  I hope you get answers soon!

Hi Molly,

Thank you so much for your reply, I really appreciate you taking the time to respond and for providing me with some degree of comfort. 
 

I have had my CA125 results back with a reading of 27. The doctor has asked that I have another scan but doesn't seem concerned.

I hope you are well, and thanks again. 

I'm glad your doctor isn't worried, and I hope you're feeling better about it as well!

Hi, I had a ultra sound yesterday. I delayed it since March due to lockdown.
I was referred by a&e dr as I had terrible awful pains (worse than labor). Thought it was appendix so went in. It's not really bothered me since-the occasional pains in between periods. 
Anyway, I got appointment yesterday and the Sonographer said quite confidently that she thinks it's a haemoradic cyst which bleeds in to itself. I don't seem to have any symptoms other than period pains to left side which come and go. 
 

absolutely terrified and-wondered if the sonographer would be qualified/experienced enough to be able to say what she thought it was. 
 

I'm 40 with a 7 and 1 year old and absolutely terrified it's something worse. How long did it take to get results etc after your ultra sounds? How did you manage to keep it together? X