referred 2ww for swollen lymph nodes

Hello - thank you for taking the time to read this post.

 

I was referred yesterday to head and neck I think after very politely losing my temper with the GP.

 

I spent the beginning of lockdown whizzing about in the sunshine. Stressed as self employed but fairly accepting of the whole pandemic situation. I had been taking prescribed Vitamin D after months of fatigue and a positive blood test of low levels. I have also had night sweats for about 6 months - hormone levels were checked but they were fine.

 

Around the 16th May I became really fatigued. Ill with it really. Just getting up and dressed felt like a milestone. My husband noticed my nodes under my ears were swollen. Apart from the tiredness there were no other symptoms. Did econsult and was diagnosed with post viral fatigue. Husband (dentist) concerned about lymph nodes so we waited for 4 weeks to see if they went away. Left side very noticeable, right side not so much. Did another econsult at 4 weeks- invited in as also have weird numbness in right hand along index finger. Doc not really worried about nodes. Ordered more blood tests incl. glandular fever. 

Another econsult last week (week 6) I wrote everything down in the econsult- nightsweats, fatigue, facial flushing, fatigue, pain under left rib (had that for ages). Doc called - glandular fever result negative. Maybe I've had mumps he suggested. Or the Cororna virus. Requested mumps blood test. Which is next week on the 8th. 

 

Yesterday husband checked nodes and the left is bigger. My neck aches - like my head is too heavy (bit dramatic). Having to go for a nap every afternoon as it's like someone has just flipped a switch and turned me off. Brain function just gone like an idiot and exhausted. So sent slightly cross econsult to GP stating that if we wait for the mumps results probably take 2 weeks plus 2ww referall it will be a month. He said 'Hmm.. lets have alook at the guidelines.. nearly 7 weeks.. hmmm.. yes we'll refer you'. Felt like I was persuading my kids the benefits of doing something they don't want to do!

 

Feeling very English about the whole thing and embarrassed that I've caused a fuss. Feel like I've 'wasted' my lockdown as I've been too tired to do anything - haven't even baked a cake! Feeling that every tiny thing might be a symptom of something. 

 

Why am I posting? Bit of a rant I suppose. I don't want to tell family and friends as I don't want to worry anyone unneccessarily as I'm probably one of the 'worried well' that waste the NHS time. I don't know what to expect at the appointment? And I don't know whether to make a list of all my niggles in case I just look like a neurotic nutcase.

 

Thanks for listening x

  • Hi - sorry I didn't reply earlier. I had my ENT consultation a couple of weeks ago and my ultrasound with biopsy is booked for this Friday (31st July). My husband is a dentist and we have gone deep into Dr Google and discovered that there are SO many reasons your lymph nodes can swell. The urgency your GP has reccommended is worrying but also reassuring that they are acting quickly to determine the cause. Don't get me wrong - some days I'm almost catatonic with anxiety at the thought I have cancer and other days I feel frustrated at the wait and not knowing what is wrong with me. What I do know after reading lots of posts on forums is that we may not get our answers quickly and I am constantly having to remind myself to keep calm! I'm trying to keep busy and distract myself. Yesterday I treated myself to a new dress for the appointment (any excuse!). Try and keep busy today and tomorrow to drown out the panic in your head.

     

    Let me know how you get on on Tuesday and lets keep in touch. x

  • Thank you so much for your reply! 
    What happens during the ENT appointment? 
     

    I hope your appointment goes well on Friday. I will keep you updated with that they say to us on Tuesday too and I would love to keep in touch! 
     

    It's such a worrying time. I'm really hoping it's not cancer. I really really am but because he has lost over 3 stone in a few months and suffers badly with night sweats it just seems like a really bad sign. Thank you so much for getting back to me. Praying we get the results we want soon x

  • Mine was a telephone consultation - I was super nervous before the appointment but the consultant was super lovely and it was simply a case of 'you have lumps? - Let's get you booked in for a scan and if we need to we might take a few fine needle biopsies at the time. It's probably nothing but it's best to double check'.

     

    I have had nightsweats and been suffering really badly with fatigue. I haven't lost a significant amount of weight and my appetite is normal. I have been experiencing pain under my left rib - I've had that for ages though. Sometimes I worry it's all in my head and I'm connecting dots that aren't there! But then I look in the mirror and I look like I've got mumps - I'm actually pleased to wear a mask in shops as I feel quite self conscious about my fat face lol. 

     

    The one thing I keep going back to when I have darker thoughts is how many people on these forums have successfully been treated and have been in remission for years so even if it is something terrifying to imagine it's not a death sentence anymore. A horrible battle I imagine but one filled with hope.

     

    My eldest is nearly 20. Are you both on good terms with your families? Sometimes when I'm feeling super anxious I just need to vent which I've done a few times and I always feel so much better. The anxiety for me is more the not knowing as I'm a list maker and a planner. I like to know what's coming so I can be prepared. I think from my research I'll have the biopsy and then another consultation which will tell me what the biopsies have found. This will be the crossroads appointment. 

     

    My husband is being super lovely - which makes me think he's secretly a bit worried too!

     

    Good luck on Tuesday!!

  • Hello, 

     

    thank you so much for getting back to me. I'm glad that your ENT appointment went well and you have your biopsy soon so you get a clearer picture of what is going on. I'm trying to stay positive but my anxiety is so high! 
     

    Im hoping this appointment goes well tomorrow and that the doctor can give us some more information. I will keep you updated. It will be lovely to talk to someone who is going through something similar! 
     

    yes we are very close with our families so I venting will make us both feel slightly better I'm sure. I'm just praying it's nothing serious. 
     

    Thank you again :)