Bad experience at breast clinic yesterday

This is my first post and I would like to preface this by saying I am about to get real whiny and rant!

I'm 24 and three weeks ago I felt a lump on my right breast. Tried to keep calm at first and visited my GP, who had a feel and said although she could feel the lump, there's really no telling what it could be on her end. But given my age and no family history, she said it's unlikely to be serious. She still referred me to the breast clinic as standard. She was incredibly nice and explained all the different types of lumps we get in our breasts. I also think she was about the same age me and she really understood my worries without giving me false promises. I came away from the GP feeling ok and not too scared, though of course a little anxious.

During the wait for the breast clinic to arrange an appointment, I was not anxious and went about my day to day. Eventually they did not call me and I had to call to arrange the appointment myself. They said they'd call me back and surprise surprise they didn't. So I called back the next day and wouldn't get off the phone without an appointment.

I had the appointment yesterday and it was really difficult for me emotionally. I went on my own, and all the other women waiting were also young, 20s or 30s, which was both sad and reassuring at the same time. The initial breast examination by the doctor was super quick, in and out bish bash bosh with no information. Only felt my breasts not my armpits which with hindsight thought they should have done. It felt very clinical and did little to assauge my anxiety. Then came the three hour wait for an ultrasound. Ultrasound was ok but again they gave me little information on what they had seen, all they said was ok we're going to do a biopsy now, and went ahead and did it. It was uncomfortable but not painful.

Then I saw the doctor again and all she said was we'll contact you about the results in a week or so. No information. I tried to ask a question but they had already opened the door signalling me to leave and that's when I burst into tears. I expressed my anxiety to them, how no one had even given me any inkling as to what the lump could be, no information on what the hell was going on and everyone was being very elusive. The doctor misread my tears as wanting reassurance, and said she doesn't reassure her patients incase the outcome is not good. I said I did not need reassurance, simply information and her judgement as a doctor of the possible scenarios. She finally told me they had found a solid mass of 25mm and the biopsy would confirm whether it was a fibroadenoma or something worse. 

I went home and immediately spoke to my best friend who is a doctor who explained things to me in more depth about all the possible lumps and bumps. I was extremely unsatisfied with the breast clinic and felt all the doctors and nurses were being elusive. I'm not saying I wanted someone to hold my hand and tell me not to worry, but as a young woman who was clearly anxious I needed to know what was happening and their professional opinion. I'm now incredibly worried about the results and am thinking the worst - I don't know if they were being elusive because they suspect its something bad, or because they simply do not know how to treat their patients.

  • I am so sorry to hear of your experience. I was seen in Edinburgh, where the care was second to none. We have a self contained Breast Unit where all the tests and scans are done the same day with a result at the end of it. I was in treatment days later.  That's no consolation to you , of course.
    I have had fibroadenomas on and off for years. So I wasn't worried to find a lump. It was such a shock to get a cancer diagnosis.

    At this stage, I think you have to be positive. It can be simply that it's not clear and they need the test results. More often than not, the lump is not sinister. I do think the staff have a difficult judgement to make- every patient is different in terms of what they can understand, and how much information they can take in at once.  They have to size you up in a short time and run with it.  I suspect the simple answer is that your lump is not obviously sinister but they can't say that in case the result says otherwise.  Imagine how you would feel if they told you it's probably nothing, then told you, sorry, we got that wrong!  My lump was so bad it was clear on the ultrasound that it looked abnormal, and the doctor told me this. And the biopsy confirmed it. I do hope yours is fine, but if not, you are in the right place and there are people on here who can help.  

  • Thank you for your reply and taking the time to read my rant! I'm very sorry about your diagnosis, I'm sure you are dealing with it best you can. I'm glad you have this community as it seems like a great support system.

     

    I totally get what you're saying. I didn't want them to lie to me and say it'll all be ok, I just wanted to know the basics i.e. its a 25mm lump, what exactly is a fibroadenoma, what is a breast cyst etc - only after speaking to my friend did I find out the different distinctions! I'm a scientist so I think I'm just the sort of person who wants to know all the clinical exact details, it helps me feel more prepared! 

  • Hi

    As a fellow scientist I know where you're coming from, I tihnk due to covid the health care professionals don't want patients hanging around (for their safety and ours). I'm sure it would be a very different experience in normal times. That doesn't excuse their behavour esp. as your very young. I'm glad your friend has explained everything to you and you'll know the biopsy is required for any mass in order to diagnose. Fingers crossed that it turns out benign and you can ge on with your life.

  • Agree with what you've said, thank you for the reply x