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Finding it hard to cope

MrsLJB
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I'm actually going crazy...

 

my symptoms are not improving and now have a lot of lower back discomfort that I've never had before and nothing would have caused it. Been going out of my mind crazy waiting for my colonoscopy referral on the 2ww pathway only to call this morning to say they havnt even received it yet- so now waiting for GP to call me back this morning to get this going again.

but I'm struggling so bad, I'm just in this black

hole if I know what I'm going to be told and it's just effecting all aspects of my life in such a negative way... 

i has a CT with contrast last Thursday on my abdomen and pelvis which showed uncomplicated scattered diverticuli in my distal colon and cannot entirely exclude pathology and to have a colonoscopy... I've had bloods done but reading more and more this doesn't give a great indication as many people have had bloods come back totally normal to be diagnosed with C.

im going out of my

mind crazy and I just don't know what more I can do...

  • Offline

    I totally understand how scared you are. But I would advice you to breath, you might have diverticulitis? Which is very manageable. 

     

    Like you waiting on a sigmoidoscopy for blood in my stool and spiraling and freaking out on a day to day basis. 

  • Offline in reply to Sabr

    Thanks for your reply!

     

    im hoping it is diverticula, I'm hoping with everything I have that it's just that, just now with my back pain I feel like everything is just getting worse! I don't have stomach pain, mainly change in stool, consistency (very thin and soft) and how often and just feeling like I've not fully gone and loads of mucus (sorry for the tmi) Everything just seems to be pointing to the worst and it's driving me insane- I e got a colonoscopy booked for the 21st July.... so now just driving myself fully insane for 3 weeks! 
     

    can I ask what your symptoms are? And when did you do your FIT sample? I hope you find some calm... and if you do can you send it my way too! 

  • Offline in reply to MrsLJB

    Hi do you get blood in your stool? 

     

    Havent had a fit test but the blood is very visible so is there any point in getting one. I have been trying to get this checked for so long and now I’m pregnant and thinking the worst. Today I had another case of dark red mucas clotty blood I’m so scared I feel like I can’t function. So glad to hear they have given you an appointment for colonoscopy, I’m still waiting to hear something for my sigmoidoscopy for months now.

  • Offline in reply to Sabr

    I've had blood in my poo but mainly mucus for quite some time! I had the FIT test which was negative.

     

    please chase your sigmoidoscopy- make them want you to stop calling, if they deal with you then you won't call anymore. 
     

    the waiting game is just the worst- genuinely think I've crossed over into insanity- the thoughts going through my head I don't think are normal at all

  • Offline in reply to MrsLJB

    You me both. I feel like I’m going crazy! Constantly thinking about it. Depressed fully after I come out of the  loo.just unbelievably wry frightened. 

     

    Did they let let you know when you will be getting a colonoscopy? I have a phone interview on Friday like that’s gonna help :/ ! 

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