Hi Andy

Sound similar to what I'm going through atm. Had a swollen node by my collarbone, waited 3 weeks to see if it went. It didn't. Saw my GP and got referred to have Ultrasound and they also did a needle biopsy (4 samples). Was this the same for you?

Waited 3 weeks for results which came back inconclusive (this is common apparently) so it was recommended removal of the lymph node for testing as this would give a result. A week later I had it removed under a local as it was close to the surface of the skin. I'm almost 4 weeks away from that now and finally got a call Friday to say I have an appointment with a Hemotiligest this Monday at 3 pm. 

I've been trying not to think too much about it, but actually me researching Lymphoma (Lymphoma Action is a good website also) Has helped me.  They are for the most part highly treatable. I am otherwise in good health so fingers crossed. Also, 9 out of 10 referrals come back clear. 

Good luck! I'm sure it will be fine. That's what people keep telling me :-/ 

John

Hi John,

Thanks for the reply. Yes,  my ultrasound experience was very much like yours,  although they only took 3 samples as far as I can remember. The person taking the samples was getting the assistant to take more photos of the ultrasound during the process. The lump isn't close to the skin and it's usually only visible when I raise my arm. It's quite large - close to golf ball size so if it is going to be removed for any reason I doubt a local would do enough!

Like you I'm generally in very good health. I've also researched and you're right - even if it is serious,  it's usually very treatable. 

Hope you're appointment goes ok. Let me know. 

Cheers

Andy

So got my results and I have been diagnosed with NLPHL (Nodular lymphocyte-predominant Hodkin lymphoma. Apparently it's very treatable and quite rare. Next is a PET scan so see if I need chemo or just radio if it in one area. 

Not the best news but feel better for knowing.

John

I'm really sorry to hear of your diagnosis but being told that it is very treatable must be so good to hear.

im waiting at the moment, a lump in my armpit.  They have my biopsy results but won't tell me what they are until my appointment on Thursday.

my PET scan has been brought forward too tomorrow which has gotten me very worried and I'm going out of my mind.

John

Sorry to hear that,  but you must have hope given how treatable it seems to be. I wish you all the best - I have no knowledge whatsoever of where the next steps will take you but hopefully everything will work out ok in the end. It's not even been a week since my biopsy so I've got some more waiting to do yet. 

Regards

Andy

Hi Eddie, 

Seems odd that they have results but won't tell you yet. I understand they often prefer to discuss results face to face rather than over the phone and this doesn't necessarily indicate whether the news is good or bad. I don't know about these PET scans - time for some research on my part. Either way, having it sooner should mean you know more sooner as well. Knowing how my mind is running at the moment, I understand how you're feeling. Not knowing makes the time go by so slowly. 

Regards

Andy

Thanks, Andy, I'm sure you will be fine. Most come back as negative. Don't worry about the length of time it takes to get results too much. But id start chasing when the 3-week point is coming up. :-)

Fingers crossed for you

John

Hi Everyone,

Thought I'd piggyback in here as I have a similar issue at the moment, but so far, the Doctors seem to be treating things quite differently than everyone else's experience on here so not sure what to make of it all?

I found a lump in my armpit some weeks ago and took myself to the Doctors fairly sharpish (lost my Dad five years ago to one of the really nasty lymphomas - so tend to be jumpy about lumpy lymphs). So far however, they've been focusing on bloods. One lot last week came back with a high White Blood Cell count, but as there's no known cause for the count being high they were concerned and called me back in this week for more bloods, to see what the change is over the course of the week (together with the utterance 'it might not be serious but if it is we've hopefully caught it early'). I'm a little confused as blood testing seems an odd way of dealing with the situation and is possibly delaying things, which is even more concerning given that I'm 27 weeks pregnant, so now I'm panicking about when and how, if it is Lymphoma/Leukemia/Breast Cancer, it will be diagnosed or treated and how it'll be possible to cope with a newborn. Let alone the pertifying thought that I may not see them grow up (pregnancy hormones are not helping with worry control, apologies)... 

John - sorry to hear about your diagnosis but its good the ball is rolling and it's great that they're confident its treatable.

Eddie & Andy - best of luck to you both. 

Best wishes,

Kate