Hi

I know this sounds easier in theory rather than practice but until you have the facts you need to stay positive both for yourself and your children. 

They found suspicious cells during a routine gynae operation last year and I convinced myself I had late stage ovarian or peritoneal cancer. It turns out I have mesothelioma which is still cancer but I was eligible for surgery and I'm currently cancer free. 

Just remember that everyone is different. Some people survive stage 4 cancer because they react well to treatment and they never give up hope that they can be treated. Even when hope looks slim you need to believe that you'll be in the percentage that survives. 

Whilst I cannot help you with medical advice, I echo the sentiments from Louisetc above and wish you nothing but the best. Stay positive for your lovely family! 

Thank you I really appreciate your response. It's really hard to be hopeful right now. My doctors have been horrendous with me. I've been constantly dismissed by doctors and specialists due to my age and starting weight. This has been a huge battle and I feel I still haven't started the battle. Even though my CT shown a cancerous type tumour in my liver, the doctor for some reason is declining to request an MRI. I have an appointment with the gastroenterologist on 24th, but that's just for a chat. I still haven't had proper investigations and I'm in so much pain now and I'm wasting away. I'm so fatigued it's horrendous I've never felt so weak in all of my life. I must get them to see the severity of this when I see them on 24th. I'm so scared it'll be too late 

Thank you I appreciate that. It's so so difficult. I kept being told I'm "too young" and now it's so bad I'm scared I won't make it. I'm literally fighting medical professionals for my life, it's horrendous. I never in my life expected to be facing something that could stop me from seeing my children grow up. They're so young I've barely gave birth to them. It's all so cruel 

You must continue to keep up the fight! Do not lose faith. It sounds like it has been a tough road and I hope it gets better for you. Let us know how you get on at your next appointment. 

Yes, please do let us know. Please keep up the fight. Insist on an MRI or even a CT scan. Is there someone who can advocate for you? Something is causing such drastic weight loss.

All best. 

Ceyenne

I had a CT scan which I have the results of, and after a quick google (I know I shouldn't google) but it's the exact same density and pattern etc that a malignant liver lesion would be. I had an ultrasound after the CT scan which could see the dark patch but not properly so they said it "could be a normal variant" on the ultrasound. I was told I should get my GP to refer for an MRI but my GP literally refuse to. I've spoke to 3 different doctors at the surgery and even got hung up on today by one. I'm going to have to contact PALS but I will make the gastroenterologist know how severe this is when I'm there on 24th. I'm in so much pain I can't walk properly so I will get someone to wheel me in and maybe then they might take notice. The pain originated in the right of my colon, so I imagine that's where the primary is. I spoke to the doctor years ago about my bowel habits but they weren't concerned so I wasn't either, again with my age I tarred it down to IBS but now, well, I guess I shouldn't have done. But given the lack of investigations even now when I'm drastically ill, I doubt it would have gotten any type of referral years ago

I honestly feel like I'm losing my fight before it's even started and that's what's making me give up any hope. I'm genuinely in fear for my life, I'm so scared I will pass before I even get a diagnosis at this point 

I echo what Louisetc said. Focus on getting the diagnosis, and also make sure you enjoy time with your children.

Diagnosis of complicated situations inhabits an awkward zone between "something's obviously wrong" and "everything seems OK". That zone is full of uncertainties and surprises, good and bad. You have to engage in the process until you get a result, and then things will become clearer.

Please stay positive, I know it’s hard to but please try. Can’t imagine what you must be going through. I just don’t understand why medical professionals are so laid back about this it doesn’t make any sense. Please try not to worry.