Hi to anyone who comes across this post. Huge admiration for everyone ️ If anyone has any advice?
I am 30 years old and I'm September2019-December2019 I experienced very strange patterns of sporadic unexplained bruising on my legs, I felt fatigue and coughing up blood sporadically old blood and I was sweating. Continued as normal. I attended my GP in September 2019 nothing was said. Physical examination in November 2019 due to severe weight loss , and pressure behind left breast bone hard to explain its not pain it's horrible discomfort GP on examination noticed swollen lymhnodes in groin. December 2019 4 larger and smaller coming up in neck, and one larger behind ear. Persistent sweating that still hasn't went away during the day too. Hearing loss for a month in left ear antibiotics for seven days. Extreme fatigue and feeling malaise, sporadic itching everyday, coughing up old blood sporadically (from lung), pressure/strange discomfort since December behind chest. Swollen lymhnodes in both sides of groin, one behind one ear (occipital), auriclar, both sides of my neck two, the one at the back of my head is definitely not moveable and hard. I have have experienced hyperglycaemia on four occassions. In general I just can't do what I used to at all anymore the fatigue is beginning to become unbearable. The lymhnodes appear to be growing because there are tiny lymhnodes along side some that are swollen. Everyday now these symptoms are affecting me and I wake up my head drowned in sweat. I had an endoscopy to see where the blood was located and it's not the stomach. I had an x ray that wasn't clear but I didn't get a second one he asked did I smoke which I don't and didn't really investigate. Usual Blood tests have been had in February and they didn't show anything. I had a PET Scan the beginning of February and it was clear. I haven't had any other tests and when I asked for for an ultrasound of my lymhnodes for irregularities I was told it was the same as the PET.
Its now June 2020. I have lymhnodes swollen nearly in every area now and they are not going away. You can feel at least 9. I have daily random itching. The tiredness is unbearable some days and I try to pretend it's not there but I can't anymore. Constant sweating everyday it's like my arms are crying I never had this issue. Weight loss for nearly a year now and I can't exercise anymore I just don't have the energy. Pressure behind breast bone it's very hard to explain because it's not pain but the discomfort has been so bad on some
ocasions I couldn't stand. Referred eventually to pulmonary because of the blood? And then Haematology for the swollen lymhnodes not going away and growing. Full blood work clear.
I attended my GP 4 weeks ago as I had experienced the Hypos. The Occipital node had not shown up at this point as it feels like a bump on my head. I also sometimes go against my breath and when I cough up it's awful. He didn't say much and was very dismissive even though he said my spleen appears to be up when he examines me? He dismissed me said he would not help I probably just had the Epstein virus and didn't give me anything. I am not one to be sick and I feel a bit silly but I just know my own body and how thin and tired I am alone has me concerned.
I rang the Haematologist dept as I had attended once and with that one visit and examination he ordered the Pet Scan that came back clear in February. Since that's came back clear i am getting worse instead of better I won't be seen until September she said at the least and advised if my symptoms where to get worse just to present to AandE? Tests: Endoscopy, PET Scan, blood work (February). I haven't had any further testing or any other tests. I suggested a biopsy to my own GP and he said no because of the PET scan. Is it normal for lymhnodes all over in time continue to grow and become enlarged without an exclamation?
