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Awaiting test for IBC breast cancer

Bonnie79
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Hi everyone,

 

My head is in a complete spin and I'm sick to the pit of my stomach, I'm sure this is probably a regular reaction when you here those few little words?

Although I'm awaiting my two week triple assessment, I'm still so dumbfounded by the doctor who initially assed me and what he then went on to tell me.

I went to the doctors because I have a sore on my breast that I've had for at least 6 months, this may seem like a long time to leave getting this checked out but during that time I was planning my wedding and moving house, on top of xmas and then this covid-19 nightmare. It just didn't seem like a priority and the time felt like it went in a flash, im now very happily married and settled into our new home .

My sore which is on my areola, has never healed and randomly crusts and then leaks a nasty fluid,  the doctor seemed quite concerned when I mentioned this over the phone and called me in for an assessment.

After checking to see if I had a temperature or any sign of coronavirus, the doctor carried out his assessment. I'm thinking worst case scenario I'm walking out with a prescription for antibiotics and wont be able to have my baileys coffee tonight , well that was not the case at all.

After the doctor finished checking my breast he just turned to me and said " I'm really sorry but it's better to be frank  " I looked at my husband rather confused, before I had a chance to say anything the doctor precedes to say " You have a large lump under this sore and unfortunately IT IS breast cancer! Why oh why did you wait so long to get this checked out??"

I interpreted the messege " dfrg jjhgf dftgbcs ddrgb " and looked at my husband extremely puzzled. The doctor continued to apologise profusely for being the barer of bad news, there was absolutely no shadow of doubt in his mind what so ever!

I was told that the doctor was making an urgent referral for a triple assessment at the hospital and that i would likely be seen the next day.

Once the shock subsided slightly i checked myself and felt the lump that feels like it's the size of an egg but extremely bumpy, my breast is quite inflamed and extremely tender to the touch, after sobbing my heart out I fell straight to sleep and slept through the while night 

I feel some what calmer today after reading alot of stuff on google but mainly the point that cancer can NOT be diagnosed without a biopsy? So surely the doctor could have been wrong in his examination?? 

What ever the result will be, it will be and I will just have to adjust and fight with all my might if it's not good news, however had anyone else ever had a doctor do the same?? 100% adiment that its cancer??

My sore is approximately 2 o clock on my areola and the lump is at least 5/6 centimetres in diameter. Has anyone ever had a similar situation and it turns out to be just a simple infection that goes away on it's own??

Thankyou for reading my post and thankyou for any comments you leave xx

 

 

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    Canceer 

    Hello im.so sorry to read your post and what you are dealing with. 

    I wish i  could  reasuure you but im.not a doctor.  The only thing i can tell.you in.answering your question is i was seen at the breast clinic after finding a hard lump that didnt move.i was told by the consultant after feeling it and a ultrasound which showrd it up( 3 Mamagrams didn't show up anything as my breast tissue is to dense. ) i was told it was cancer.i had 5 biopsies taken, 3 from.my breast and 2 from.under my arm as it also showed my lympth nodes to be swollen. 

    On the 26th May it was confirmed by telephone call that it was cancer and that it had soread to my lympth nodes.  

    So from my experience and a lot of other people on hete saying the same thing hapoened to them, id say as dictors and consultants deal.with this kinda thing day in day out, that they have a good idea of what it actualy is.

    Im sorty i can't be of more help , but when i was told i did ask are you definetly sure, could  you of got this wrong. And my consultant just said" i. Pretty sure ive  not got it wrong, "and she was right she hadn't . Xxx

     

  • Offline in reply to Jassoscared

    Thankyou for your messege I'm so sorry to hear that it wasnt good news for you. I hope that getting your results allowed you to focus on the fight rather than the what ifs, although I cant even begin to imagine how you felt as I'm still awaiting my tests.

     

    I do hope that you kicked its *** though!! And come back twice as strong than before. Big hugs xx

  • Offline in reply to Bonnie79

    Bonnie 79.

    Hii thanks for your lovely reply

    I have a long way to go yet before i can  kick it's *** where the sun dont shime lol.

    Im really newly diognosed and havent even been told the staging of it yet.So hopefuly when i have  got that  its good news, and once ive got operation over and any treatments i need , ill definitely be doing my best to stay strong and kick it out lol.

    Ive just done my first online grocery shop  and feeling quite accomplished lol, had to pay for a slot as all the free slots had gone , and its not an ideal slot either lol between 9pm/10pm but its on a sat eve so not to bad i I guess.. 

    Anyway i do hope you keep.in touch on here and i.pray that everything  will be positve  for you. Xx

  • Offline

    Hi Bonnie,

    So sorry to hear you are going through this.

    I just wanted to share with you my Mum’s experience when I was 13. I remember she had a lump and went to the GP. He was convinced it was cancerous, and insisted that he believed it was end stage! She left the appointment terrified (a single parent with 4 children). 

    She was given an urgent referral - fast forward 2 weeks and it turns out it was simply a cyst which went away eventually. Even in these circumstances it is not always the worst case scenario. 

    I hope you get good news,

    Sophie xx

  • Offline in reply to SophieM256

    Hi Sophie,

    Thankyou for your messege

    How awful for your mum but I'm so glad they got it wrong.

    I have 3 teenage boys so I'm worried more for them but how can doctors get away with saying this? I think its extremely dangerous! And could lead to so many other negative experiences. I hope your mum complained at the time because she must have be distraught.

    Bonnie xx

  • Offline in reply to Jassoscared

    Oh bless you, with this covid thing shopping has been extremely difficult, getting a slot with Tescos is like winning the lottery

    Unfortunately I have a few other illnesses and my fibromyalgia cripples me on it's own so I heavily rely on Tescos.

    I hope you manage to get everything you ordered, that is also like the lottery. Have you got anyone who can help you with things like shopping? I guess covid has probably made it impossible for you to get any help.

    I hope you find out soon what stage you are, I've been on Google all day which is such a bad idea and have convinced myself I have it everywhere! 

    I'm not religious but I will say a little prayer for you. Hopefully we can stay in touch and offer a bit of support.

     

    Bonnie xx

  • Offline in reply to Bonnie79

    Bonnie79

    So sorry to read about your fibromyalgia i have a few friends that have it so i know somewhat,  what youre having to deal with..

    No unfortunately no one to help.with shopping my son's just hopefully finished chemotherapy, he has a scan  due on the 10th June  and sees his constant on the 25th June  to hopefuly get some goid news, so of course he has to isolate untill August. And  my daughter has to isolste as she has Rheumatoid arthritis and is on a stromg injection drug that wipes her immune system out.So now I've been advised not to go out  apart from to hospital appointments, Tesco's it is..

    Yes please stay in touch on here , its good to talk  Wishing you well . Xxx 

  • Offline in reply to Jassoscared

    Oh gosh! Your family is really being tested at the moment. Fingers crossed that your sons scan comes back clear. The worry must really get you down? Try to stay strong and positive although easier said than done.

    I've got occupational health coming out this morning to measure up for the stair lift and my house looks a state all I have done since the doctor mentioned the 'C' word is eat chocolate in my pjs and sulk whilst searching on Google lol.........I think I'm creating my own personal little nightmare.

    Big hugs xxx

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