Hi worriedbetty.

I’m sorry to see you’re so worried, but hope I can add some perspective as someone who has had cervical cancer twice now. 

It’s very common to have an hpv positive result-most of the sexually active population has come into contact with the virus at some point in their lives. It can go dormant and produce a negative result at another test but once you have hpv, you have it always in your body. 

Borderline changes are the lowest grade of cell changes, and are not cancer, and having hpv and borderline changes should not cause pain. There are many strains of hpv and the strains which are high risk for cell changes are not the same as those which cause genital warts, so the warts have no connection with cervical cancer. The colposcopy will be an appointment to look closely at your cervix and perhaps take biopsies if necessary. Biopsies may not be necessary depending on what they see, but borderline changes are the lowest type of cell changes so you may just be monitored.

Pain in the upper left abdomen does not suggest cervical cancer-pain would be expected in the pelvic area. 

Although I am not a medic, on balance I would suggest that you do not have cervical cancer, based on what you’ve said, my own experience and speaking to dozens of women who have this cancer. 

I hope you don’t have long to wait for your colposcopy and that it puts your mind at rest. Please let us know how you get on, and if you want to talk or have any questions I’ll be happy to try and help if I can. x

Thank you so much for replying to my message I really appreciate it.

I have a couple more questions, once a person has HPV is there no way of getting rid of it? not even through diets/ supplements?

I know this is a silly question, but the genital warts strain of HPV is why I tested positive right? but what about the bleeding? as that is supposed to be a key indicator of cervical cancer?

Thanks so much you've really helped calm me down, the information online is overwhelming and so much of it frightens me. I don't know if and when I will have a colposcopy so the waiting game is rather torturos.

Hey there,

I think that having lower abdominal cramps is relatively normal, I'm no doctor but on the basis of just that alone I would really try not to worry.

You're doing the right thing by having a smear test and hopefully that should put your mind at rest but in the meantime please please stay off of google, keep an eye on your symptoms and reach out to your doctor if it gets worse but don't worry yourself too much as google is very misleading.

Hi Betty-good to know things looked normal for you! I think your continued abdominal pain does need further investigation, but hopefully you can relax and knock cervical cancer off the list of possibilities. 

I’m doing really well thank you and feeling fine! xx

Hi Minska,

Thank you for your message and kind words of positivity.

I will let you know how I get on, I'm not a 100% convinced yet because I still have the abnormal bleeding and abdominal pain with no explanation :( so I'm going to try and be positive until I get more information.

Hope that you have a wonderful week ahead!

Hi All,

I'm back as I have no one I can really speak to and I am genuinely quite worried about myself as I have not told anyone I know that I have HPV.

Since I was last on here, I have tried to eat healthy, I take a strict regime of multivitamins and. yet I still have the persistent abdominal ache on my left side.

Today I did wear high waisted jeans that are a little snug which may not have been the smartest move and I am spotting light watery pink. My period app says I am ovulating so it could be an ovulation bleed but I have had spotting here and there since I went for my colposcopy.

I am super worried, I dont think they did a biopsy at my colposcopy so I don't know how severe my HPV is (just that I am positive for 16 and 18 and possibly 6 the low risk one as I had warts too). I am starting to think it could be another type of vaginal cancer - or definitely cervical cancer. I am feeling pretty low :( any advice/thoughts would be welcome

Hey are you still active on here? I'd love to chat! Please xx

Hey there, i'm here and happy to chat!

Can I asked what happened with your situation babe? You sound worried how I am. Did you go doctors about your pain and spotting or has it gone away? Just how are you generally xx

Hey there,

So many things happened but not a lot at the same time.

I went for my second smear test last year, and where my cells were borderline the smear came back as CIN1, so essentially the HPV went up. This as you can imagine sent me into a tizzy, the colposcopists looked at my cervix but did not do a biopsy because I have a titled uterus which means everything is back to front and so it was hard for them to see the top of the cervix but they were happy with what they saw. That did not reassure me at all.

I was referred to the gynae for the spotting towards the middle of the year, he performed a pelvic US and told me that the cyst I had was small and not a concern (it went down in size from the last scan). Because my spotting was mid cycle he mentioned it could be endometriosis but he said everything besides the small cyst was okay. 

I did end up being referred again to the gynae because my symptoms persisted and the pain kept coming and going and this time the cyst had cleared up and the doctors could not see anyting at all. They told me to go on the pill but I said no becuase I am not taking anything to mask the symptoms I want to understand the cause.

As it stands, I still do not know what has caused the spotting which seems to come and go. I still have HPV :( but I am working hard to get rid of it but only time will tell about that one. I still get really bad cramps occassionally :(

I hope that helps, what is happening with you?

Hey, 

So on your second smear test it is still borderline cell changes, which must be good news as it shows its not changing and please remember borderline cell changes do not instantly mean cancer, alot of people with hpv proberbly have them sometimes and do not even know! Also, I was going to say it does sound like your spotting its triggered by your bike riding. There could be old blood left from your last period that just loosens up from all the movement. Can I ask why they aren't doing a biopsy if you've had cell changes? I understand you have a tilted uterus but surely they would have another way to look into it if they was worried. Please try not to worry and keep pushing for an answer to your pain! Does sound like your IBS must be flaring up with your upper abdominal pain. Hope your okay X

My story is my partner went down on me years ago (3/4 years ago) and scatched my *** area by accident (sorry for the tmi) but it really hurt. Since then I've had a tiny skin tag on the bit if skin right next to my ***, and to be honest its never caused me bother at all. Until I come on my period this time, it got a little bit larger and I got generally itchy down there. Googled skin tags on vagina and it constantly come up with Hpv and cancer! Ive been driving myself insane and still am. I lost my daughter at 22 weeks in Nov 2020 I caught a really bad wee infection. I didnt treat it the time as I was drinking heavily day in and out cause I was hurting so bad (drinking after the loss didnt touch a drop whilst pregnant and uti test where coming up negative so I never really knew) So basically fast forward maybe about 6 months, I started to get symptoms of a uti but severe pain in my kidney area. Like really quite bad. I went to a gp and done a wee test and she had a look inside me with that plastic tube. Test was negative and my cervix looked fine. 

(Can I please add i had urine tests done whilst I lost my daughter and they come back negative. During the post mortem they found bacteria that represents a wee infection, they test for all stds too but these where clear. Unfortunately due to me having a weak cervix , which I didnt know and they didn't know until I lost my daughter , the uti spread to her amniotic fluid) 

So yeah, the gp asked me to bring in wee tests in afew days so she could send it off to the lab and do a proper look as mine where coming back negative. I didnt even get to that point, I went a&e later that day and whilst explaining to the doctor that she already done a simple wee test, he was like ohh okay, done a proper lab test or used the machine or something and he come back after a while and said yeah there is an infection in your wee. After taking the antibiotics properly this time, the spotting did stop. But basically my last period was 2 weeks early. Then I didnt have one until 4 weeks and abit later which was the period I've just come off. This period was weird. There was tissue weird peices in it that I've never seen before. So much so I was contemplating whether I was miscarrying, and that the two week early period may have been some sort of implantation bleeding? Well anyway with that along with the little tag thing and the itching, I've been worried sick. Made a doctors appointment today for a call back and I went work. Had a panic attack at work and went to a&e cause I could not wait any longer for them to call. 

Saw a gynecologist in a&e, my wee test was okay and bloods where ok. She took a look at me with that horrible tube and had a look at my cervix and the tag thing. She said my cervix looked fine just a tiny bit of blood cause I am just coming off. She touched or pinched the tag and asked if it hurt it didnt. She said it looks like a polyp or a skin tag and it should be no worry. 

Whilst I was in a and e I panicked while waiting cause my anxiety is just so intense and severe, and went to the sexual health clinic in the hospital. (After googling hpv linked to cervical cancer the last 2 days and seeing stories of women misdiagnosed and all of that) I had to call to make an appointment and they usually call you within 2 days. So I am still gonna answer the call and get an appointment as I would like a Hpv test but im only 21 and have already been told I cant have a screening. If that's the case I'll have to try get one privately if I can afford it, anything to try to put my mind at rest. So yeah im still gonna be pretty anxious for the next few days or until I can get a hpv test. I know the doctor said it was a polyp and true say it did get irritated after me wearing big bedtime sanitary towels all day and in the night, where as usually I wear a normal one throughout the day and big ones at night, but only had the big ones lol.

I am really so sorry for the long *** essay and thank you so much for talking to me. Im so sorry you have hpv and I can totally understand your worry, you are not alone. But please try to let go, it is not healthy! Keep eating healthy and exercising as it can only be good, and maybe research different vitamins and there benefits and start taking ones to match you. Keep your head up x

Oh ive also been having weird little pains in my lower abdomen, kind of pelvis area I think. Im so worried I really am. Can't wait to go get tested and hopefully some scans as ive always had severe period pains and periods.

Oh ive also been having weird little pains in my lower abdomen, kind of pelvis area I think. Im so worried I really am. Can't wait to go get tested and hopefully some scans as ive always had severe period pains and periods.