Dreaded wait again

Had Vulva cancer 3 years and 1 month ago and been all clear since. Then 25th April I felt a lump in my armpit when rubbing my shoulder and arm (bysip) side. My GP gave me 7 days antibiotics just too make sure it wasn't an infection but it didn't go away. Thankfully she agreed too see me on the 1st May and within 5mins of examination stated she was fast tracking me for tests/biopsies and I'd be seen wirhin 2 weeks due too my recent C and that the lump was the size of a malteser. 3 weeks on still mo appointment or anything. I'm worrying more and more as I'm sure it feels bigger. Trying too be positive but so scared it's back as feels like de ja vue as 3 years ago I was treated with antibiotics for 18mths before beginning diagnosed 

  • Hi there ..

    So sorry, it's what we all dread, and live with after cancer ... but if I were you I'd call your G Ps surgery and ask them if they can chase it up .. as they must have wanted you to be seen quickly ... in case it's fallen through the cracks ... it's your health so don't think your putting anyone out ... 

    Let us know how you go .. fingers crossed for a good result ... Chrissie x

  • Hiya Chrissie 

    Called GP today and got a call back from doctor only for her too say we can't really do anything apart from maybe send a letter tomorrow too chase it up,she couldn't even tell me where the letter had been sent too as in what department ..think I'm going too call my gynaecology cancer nurse tomorrow just too see if maybe she can find out where I'm being seen (what department) 

     

    Thanks for reply. Hope you are well and healthy at this awful time ....Racheal xx

     

     

  • Hi Rachael,

    So sorry you're going through this! Everyone says the waiting is the worst - I saw my GP on Friday and had a call from the breast clinic today (Monday) offering me an appointment a week on Wednesday, and that seems like an eternity. I can't imagine how frantic I'd be if I still hadn't heard anything 3 weeks later. I hope you manage to find something out tomorrow. Good luck and let us know how you get on xx

  • Thank you hope all goes well for you. And I'm still waiting xx

  • Thank you you must be going spare with worry. Did you have any luck getting hold of your gynaecology cancer nurse? I can't imagine what you must be going through - it's hard enough with an actual appointment to wait on, I would just be frantic by now. Keeping my fingers crossed you hear something soon xx

  • No haven't managed too get hold of her although have left a message for her too call me. Yeah the worrying is awful. Was 4 weeks ago I found the limp under my arm,did 5 days of antibiotics prescribed by doctor just too check it wasnt an infection then day 5 was examined by docs. Now 3 weeks on I'm still waiting for an appointment from the hospital yet I should have been fast tracked due too me having C 3 years ago on my vulva . I know with the current situation the NHS is busy but I found this lump 4 weeks ago. I could be worrying over nothing I mean it could just be a fatty lump and my arm/shoulder aches as it sat on a nerve but on the other hand it could be C again. The stress and worry doesn't help. I dont think she'll call me now as it's gone 5pm but hopefully she'll call me tomorrow I'm not sure what she can do too help as she my gynaecology cancer nurse and this my armpit just need too find our where my appointment is. The ache that bad I have complimented going too A&E...is the not knowing it's awful.

    Lots of love xxx

  • Ah hun I'm so sorry for you to be going through all this. Like you say it could be nothing & I sincerely hope it is - in fact the chances are as you say that it probably is a fatty lump. Most cancers aren't painful as I'm sure you know. But that doesn't stop the worry and the fear - especially after everything you've already been through with the vulva cancer.

    I'm new to all of this myself and I wish I could give you either practical advice or some better reassurances. I feel sure you're going to be fine, but for now all I can be is a listening ear. Hopefully my responses will bump your post up if nothing else, and someone with more experience can offer you more helpful advice. 

    But I'll keep checking in and I'll keep my fingers crossed for you that you hear something about an appointment tomorrow xxx

  • Aww thats so sweet of you and unfortunately some cancers do hurt. When I had the vulva cancer it was so painful they actually treated me for 18 months for infections and cysts,it was only me keep going back too the docs that finally one doctor thankfully realised they were treating me wrong. My arm isn't painful it just aches but yes am praying it's just something stupid.

    The advice I can give you is be strong and be positive it was for me the best way too beat this horrible disease. You can win and you can beat it. I hope you get good results please let me know how you get on or if you just need someone too talk too or rant at I'm here.

    Take care

    Love Rach xx

  • Ah thank you so much hun! I just replied to you on the other thread, it was lovely to see you there!

    You've been through so much already and shouldn't be getting put through all this trauma of waiting again, especially after being misdiagnosed for so long with the vulva cancer. I can't imagine what you must be going through, but you're still so lovely and supportive to others!! 

    I'm trying to stay positive. As you'll know it's not always easy and our minds can jump to the worst at times! So mostly I'm doing fine, then I randomly burst into tears or have a panic attack and can't breathe! But I'm mostly ok. I'm so grateful for your support and a bit in awe of you for having gone through this once already and stl being so supportive of other people. 

    I'm really wishing you hear something about an appointment tomorrow stay strong hun xxx

  • Hiya Evie 

    So got a call from my gynaecology cancer nurse this morning she was horrified that I hadn't even had an appointment let alone been seen but said she would look into it. 20 mins later she called back too say she'd found the request from my surgery and the hospital would call me soon. Well blow me within an hr of talking too her the hospital called me and I have too go the breast clinic Friday 10am for tests/biopsies,I got off the phone shaking which I think is a bit of shock/worry and relief as so scared. Hope you ok chick and still being strong like me told you

     

    Love Rach xx