Hi everyone, 

Man, even just typing this is making me feel frightened and tearful. 

I've had migraines since 2018 which became stroke-like (hemiplegic) last year. I haven't had an MRI done (it was cancelled last year). In the last month I've gone from being fighting fit to now barely able to function in daily life.

It all started a few weeks ago when I woke up with a 10/10 pain migraine, I couldn't lie down because it made it worse, I vomited twice and since then life hasn't been the same. 111 said that it was probably just a migraine.

About a week later I developed absence seizures, I would be talking then just 'drift off' for about 10 seconds and forget completely what we were talking about. I've had declining memory issues for the last few months but now multiple times a day my mind will go blank and I'll have to fight to remember what I was saying. I went to A&E and they did a blood and urine test but those came back clear so they discharged me.

The migraines come back in the morning and usually every weekend I am bedbound. I try to do my job and keep some normalcy during the week (I'm lucky to be able to work from home) but usually during meetings I am hit by waves of nausea and exhaustion. My symptom list is about a page long, I constantly have aura, I can just about watch TV but reading is hard and I can't play computer games. Sometimes I just sit there for hours after work because I can't do anything. 

I now have been referred on a neurology 2ww pathway and am having a video appointment on Monday but I'm terrified. I'm scared I will have to have brain surgery, and I don't know what will happen with coronavirus going on. My boyfriend is being an absolute Saint and looking after me and keeping me positive (we live together).

But the worst thing is that I can't even go and see my mum because of the virus. She can't come and see me when I don't feel well. Its scary going through this and her not being able to come to my appointments or anything. We do video calls but I find them so tiring I have to have a sleep after. She knows what's going on and she's worried and I know she's sad she can't come and visit either.

I'm just scared and wanted to post here about what's happening. 

Thanks