Hi

I'm sorry to read your post but as a nurse whose worked in gynae I have seen lots of cases where it has turned out to be NOT cancer.

The ca125 will increase with cysts as yours was complicated and irregular there is a chance it could be the worst but by no means is that certain.

Ovarian cancer treatments have come a long away in recent years.

Do your best to concentrate on getting as well as you can use good diet, positive thinking, join groups so you know you are not alone.

Do let us know how you get on xx

Thanks for getting back to me.

That's reassuring to hear. I really hope it isn't cancerous. It didn't help that every day in hospital they were coming round to tell me their concerns over and over again. It's just put me in a state of panic and makes me feel that they are pretty sure it is cancer. I'm trying hard not to think about it but it's so hard. My mum knows I had surgery to get a cyst out obviously but I've not told her that there is a chance it could be cancer. I don't want to worry her. She seems really depressed. :( 

I've had a crazy few months. I initially received the diagnosis of borderline ovarian tumour and received a letter stating that I did not have cancer and needed no further treatment. However, it turns out that I actually have primary bowel cancer and the ovarian tumour was a metastasis. They missed my bowel tumour on the CT scan and following on from my ovarian surgery I was in immense levels of increasing pain, vomiting, unable to eat etc. It took several hospital admissions before the doctors took me seriously and finally did a new CT scan. They then initially misdiagnosed me with fecal impaction... However, they sought a second opinion and found it was actually a tumour. I had an emergency bowel resection on the 15th of June to removed 3/4s of my colon and the tumour. Following this I had an anastomotic leak which caused sepsis and required a 3rd emergency laparotomy on the 21st of June to have an ileostomy formed. I lost almost 2 stone and required TPN. I ended up being in hospital for 3 weeks, my discharge was expedited in order for me to be with my mum when she died in the 3rd of July (she was diagnosed with glioblastoma in March and I'd moved back in with my parents to care for her). They then re-examined the ovarian tumour and realised it was a metastasis from the bowel cancer. I'm currently on my 3rd round of chemo - I've got to do 12 in total. It's been the year from hell.