10 May 2020 13:01
Hi
I firstly want to say I am sending utmost love to anyone who has been diagnosed with this disease. I do not yet know what is wrong with me but would really appreciate any advice if anyone has the time to give it. I am 32 y/o female with two little ones :-)
My lymph nodes have been questionable since contracting Epstein Barr a few years ago. About 10 days ago I started to feel unusually tired, been in bed most of week with aching limbs, waking up with night sweats, itchy. All of my neck glands are enlarged but one in particular at the front is so enlarged that it's hard to open my jaw. It's about 2 inches long at least. My gums have begun bleeding also even when I'm not brushing. So I'm now a couple of weeks in and feeling worse. Sent to A & E as swelling in neck got so big. First doctor considered abcess but consultant said no it's defo a lymph node.
ANYWAY (if anyone is still with me) I saw a consultant who said my bloods were normal aside from marginally increased CRP which he was disappointed by as he was hoping to find evidence of a localised infection. Chest x-ray also clear. He basically said he's in two minds and in a difficult situation as an emergency consultant. He said it could well be a really nasty virus but that it doesn't necessarily explain why my mouth is now in such a state or why I get nightsweats. He then said he has some question marks by my name but that they are small, and if they were bigger he would admit me. He said it I find any lumps in my groin or armpits to go back there but to have a sort of wait and see approach.
My questions are ... should I ask the GP to refer me for a scan or biopsy anyway? I understand what consultant says but it feels vague. He admitted himself he's not quite sure what the outcome will be. He said he's not sure why I don't have a fever if it's a virus but do have nightsweats. He said it's very strange. I'm not trying to 'skip the queue' but just am a bit lost on what to do next to really so if anyone has ever experienced anything like this, do let me know x
