Hay there ..

Whoever that nurse is, she needs a talking too .. and complaint... no one should ever say that, no matter what ...

I know when I went in for my masectomy,  I was sure I'd never come out ... so much had happened to convince me.... I wrote my will, organised my funeral ... left letters for those I loved ...

But yes it was hairy at times , needing an emergancy operation at 3 in the morning to 're open my masectomy ... looked at my son before they put me under, thinking his was the last face I'd ever see .. 

But against the odds .. even being told, it was touch and go if I'd pull through .. I did ... and I'm still here nearly 3 years later .. so I'd say, never give up .. always have hope ... yes this covid is making things heartbraking right now .. but I'm here, others are here .. well hold your hand through this ...

Tell the nurses there you have a problem hearing, and ask to explain things .. and try and get a note above the bed saying you have a problem hearing ... so what is it you have .. are you sure you understood right hunny ...

But hold on in there ... sending a vertual hug... Chrissie xx

Hiya,

That does not sound very supportive of the nurse at all to say that! I would be putting in a complaint! Sounds like she was just scaremongering to me. 

I'm very sorry you're dealing with these symptoms in such a frightening time. Just know that you're in the right hands though, and really try not to assume the worst, there could be many reasons for your symptoms! Anxiety is really the worst thing ever, it makes everyone assume the worst and really does just take over your life. 

Until you get any results back just please try to take it easy, stay calm and think positive, it does make all the difference in the world.

Take care,

Kit xx

So sorry to read about your experienc. Chris is right, you need to make a complaint about the way you were talked to particularly by the nurse who was in breach of her professional code of practice. This is the sort of behaviour which went on at a different hospital and may be a symptom of far deeper issues at this hospital.

The fact a mass has been seen on the CT scan doesn't necessarily mean it is cancerous. It may well be, but until more tests including a biopsy have been carried out, no-one can know for sure one way or another.

For example a member of my family had a large mass which might have been ovarian cancer but turned out to be a solid cyst the size of a small melon.That was 15 years ago and she is still fit and well. That's why medics are so reluctant to give an early diagnosis and will normally use phrases like "I'm afraid it might be ..." or "there's a high chance that you have ...". 

Try not to give up hope - even if it is cancer many of us survive it even when diagnosed at a late stage.

Best wishes

Dave

Hi Toby cat

I had an ovarian mass they found back in December, I had a ct scan with contrast and that was the scariest, waiting for the results to see if it had spread, luckily it hadn't and I was booked straight in for a hysterectomy and debulking surgery, after surgery I had to wait another 3 weeks for the results, which I got 5 weeks ago by phone she said I've got some good news for you, it was a borderline ovarian tumour which isn't cancer so I didn't need any further treatment and I've never felt so happy and relieved in all my life, so my point being is just because you've got a mass doesn't mean it's cancer, mine was treated as if it was because they just didn't know, and these tumours can grow quite large as well so until you know for sure try and be positive, I didn't know what mine was for two and a half months and it is very worrying and that's only natural, so I wish you well and stay positive and strong let us know how you get on 

Both my mum n myself had large pelvic masses that turned out to be fibroids.

Until a biopsy is done nothing is confirmed.

Until you get a diagnosis try not to worry.

Are they doing a biopsy?

What's the next step for you? 

Praying you find some escape from this mental torture you are going through :( 

Hi. Thanks for coming back to me. I’m due to have an ultrasound on Wednesday but I doubt I’ll know what they think it is straight away. I just don’t have any other symptons and if it wasn’t for the bleed I’d still be unaware. I thought I’d put on weight the last few weeks from overeating because of the lockdown but I was still exercising without any problems. How could it get so big without me knowing. Finding it hard to feel positive at the moment. I’d like to think that maybe it’s not malignant but just can’t 

Thank you so much for thinking of me. I’ve got my referral  and should hear back with an appointment soon. Dreading tomorrow and had a major meltdown earlier. Got myself sort of in control again. I’ve downloaded an app with soothing sounds to listen to as it helps me to stop thinking too much. I’ll let you know how I get on. Chris

Well I’ve heard from my consultant that I have a complex cyst and high cancer markers. They want an MRI and PET scan to get more information before surgery. It’s the waiting and uncertainty that’s the hardest to get through. With covid it means everything is via the phone and it’s not easy to communicate when I’m so hard of hearing. I guess I just want to hear someone say you are going to live a few more years. Sorry I’m sounding down but I’m so scared of what they’ll tell me it’s as if it’s easier not knowing. Has anyone found a way of feeling more positive when told the bad news

Hi 

I hope you are getting some support.

The waiting is certainly the worst part, I've tried to keep busy with crochet n puzzles etc whilst waiting for my appointment which is tomorrow.

If your diagnosis is the horrible c word, so much treatment is now available than ever before. 

Thinking of you