Hi there  I have never posted or replied to any of these forums before but I found them invaluable last year when I was going through something similar to you. I understand how worried you are and that you don't want to worry your parents, but please do think about talking to them as they may want to know so that they can support you. 

I also had a large mass on my left hand side which I could feel and see. I had a scan done privately as at that time I was considering IVF, and the doctor couldn't find my left ovary because I had a very large mass taking up all the space. They tested my CA125 which came back at over 900 so obviously I panicked and immediately feared the worst. It took 3 months from that first scan to the surgery that sorted it out but luckily it wasn't cancer in the end. Please don't google too much, please think about talking to your family as you need support, and please try not to think the worst. You are in the fast track system now and you should start getting answers soon.

Good luck xx

It must be scary to have that news over the phone...I think I got my CA125 results over the phone too. I’ve blocked it out now even though it was only a year ago! At the moment my check ups with my consultant are over the phone so I understand how stressful it must be not being able to talk face to face. I have to admit that although I tried not to google, inevitably I did and it didn’t help much at the point you’re at now. It just made me worry more so try to avoid it if you can. If you have questions write them down and ask the doctor when you next see them. After I knew what I was dealing with I could be more specific with my searches (it still wasn’t a great idea tho tbh!)

If you have any other questions I’m very happy to chat. We are a similar age (I’m 38) and what you are going through rings so many bells with me.

xx

I honestly didn't realise that they gave that kind of information over the phone, but I am glad that I requested the test when I did ... 

Do you mind me asking whether they also removed your ovary during your surgery ? 

I'm worried about fertility after everything is said and done ....  it's just so scary and we are so young !! 
 

xx 

Yes, unfortunately I ended up losing my right ovary and half of my left ovary because I had large borderline tumours and a cyst :sad: Unluckily for me by the time they found them they were too big to remove without major surgery so I ended up having a laparotomy last July. It wasn’t the best...but when the consultant talks about the possibility of chemo during your pre-op and then you come round from surgery to hear the wonderful words ‘It’s not cancer’ anything suddenly seems possible! PLEASE don’t fear the worst though! That’s just my story. Take it one step at a time.

xx

I was due a laparoscopy and they said that they would deal with whatever they found but it was cancelled due to lockdown... 

im assuming when lockdown is lifted I will be booked in again, I have been private before so it's a possibility (dependent on what happens) that we go down that route again if it's a long wait, but who knows what will happen ! 
 

I will keep you posted though - I think we have connected here so I can drop you a message to let you know what happens 

I just hate the waiting :-( 

xx 

The waiting is horrible, and it must be especially hard at the moment. Yes, keep in touch and if you need a friendly ear just drop me a message.

xx