Hi. I'm new to this so please bare with me, I have so much going on inside my body with no diagnosis, but I KNOW I have cancer, and now it's even harder with the covid-19 crisis to get the tests I need . I'm sorry if this seems like a rambling post, but I just need to get it out, I have a 13 year old son, who I adore. I'm extremely close to my mom also but I don't feel I can talk to her as I don't want to upset her . I feel it important to start from the beginning when I first started noticing something not right in my body . So apologies if you get bored reading this and thankyou to anyone who has made it this far and congratulations if you make it to the end lol.
roughly SEVEN years ago I registered with a new doctors surgery, went for the mandatory once over where they check your height,weight,blood pressure and a urine sample. Microscopic blood was found in my urine. The nurse said some woman have this and no cause is ever found. I didn't think too much of it and went about my life and forgot about it.
about a year later I had the worst back pain ever that lasted all night, instinctively knew it was kidney related and booked an appointment for the next day, blood again was found in my urine but no sign of infection. Nurse suspected kidney stones so off I went for an ultrasound...CLEAR... pain came and went for the next few weeks I was reffered to a urologist as I was peeing all the time at this point. Camera up bladder...CLEAR..... ct of kidneys with contrast...CLEAR. Pain persisted for months also started having indigestion and dizziness during this time. Blood tests revealed low b12 and vitamin d, also tested positive for h.pylori started and completed the strong antibiotics for this but doc refused to retest to see if they had worked. Continued for a few years the pain on and off in right kidney region, I had slight ibs symptoms also and was prescribed lanzoprozole for the almost constant heartburn/indigestion, dizziness persisted on and off which was put down to the low vit D AND B12 started 3monthly injections for b12 and tablets for vitD again docs refused to retest my levels after being on them both for over a year.
pain in right kidney on and off some really good days followed by terrible days.. fast forward to about 9 Months ago, pain is all over stomach region and pelvis, but mainly lower left stomach, with on and off pains in back and spine.
ultrasound of ovaries clear, blood still in urine pain severe.. smear test clear ... awaiting another referral to urologist to repeat same tests... the worrying part is when I first had the tests done 6 plus years ago apparently a "suspect" stone was detected in my right kidney but I was told everything was fine.. pain still there to this day.. the doctor only told me about this suspect stone 1 month ago, when he went over all my notes for the years of pain,obviously I've not passed it and the pain is still there, so what could this "suspect" stone be ?
I had a sore neck for around 3 months and found a small pea sized lump under my right ear.. ultrasound detected 6 swollen lymph nodes... may I add during the 6 years since the pain began I've been to the emergency department with excruciating stomach pain to the point I can't stand straight... several times blood tests always showed no infection... but anyway back to the swollen lymph nodes the doc put me on a weeks worth of antibiotics, even though I have no infection,and said if the were still there after 6 weeks to go back. The pain in my neck is constant and it's also started to hurt on the left side where I can also feel a lump.
stomach pain is now mainly on the lower left side of my abdomen where my ovary would be, but I still get pain all over abdomen and kidney area.. it hurts to press ... I paid to see a urologist privately he wants a neck chest and pelvic ct scan... but the covid 19 has halted this.... I know I have something bad I have no appetite I'm crying as I write this, my doctors aren't listening and say I'm too young for cancer I'm a 36 year old woman, I read somewhere that lymph nodes that are related to cancer don't hurt? Is this true I know everyone is different... the exhaustion is killing me I actually feel like I'm dying and no1 will listen.
I know 7 plus years is a long time to have something like cancer and not be bedridden or dead by now, (sorry for being blunt). I don't got to doctors often, and I worried I've put this off so long now due, to being fobbed off by the doctors and at times laughed at, that cancer has spread and will be untreatable...
im sorry for the long post I guess I needed to vent, has anyone experienced anything similar?? I'm ready for the harsh truth, so don't worry about scaring me, I know you can't really give medical advice but would love to hear from anyone, either diagnosed or undiagnosed with the same problems...
I put the title as lymphoma as that's the one cancer the private urologist mentioned thankyou
