borderline cell changes and HPV positive: freaking out

Dear all, 

I am 26 and a half and I have done my PAP test again after several years (I don't even remember how many years ago I did the last one). My results came back and it was a shock: HPV positive,  borderline cell changes and a referall for a colposcopy. I am very very anxious because I have read about girls that had borderline changes identified with the smear teast but then they found them to have cancer at the colposcopy appointment. I find it very difficult to think about anything else, it's a nightmare.   I am here looking for reassurance and I hope you can help me going through the waiting... 

Thank you a lot!!!!  

  • if you go to the top of this page, on the purple bat you will see your name. click on that and you can see the message i sent you x

  • Hiya! Just wanted to check in and see how things are? Just wanted to update too because I couldn't find many conclusions to any of the "omg I have borderline changes and postitve HPV too" posts in furious googling :)  today I had my colposcopy and all is fine! He was happy for me to go and then just get another smear in 12 months time. I'll get them more regularly now until I get 2 clear smears in a row apparently. 
     

    Have everything crossed for everyone who had the same smear results. 
     

    I should also add some words of reassurance for anyone googling. Stop googling, I found a post that gave me a bit of hope and then stopped searching so I didn't stress too much :) When I spoke to my Dr after I got my results she kept repeating to me "this is absolutely not cancer, that's not what the result means. Please don't worry!" Also, "borderline" is the bottom end of the scale according to the consultant I saw today so that filled me with a bit of hope before I actually got the colposcopy. 

  • Hi girls.

    Your posts describes everything I am feeling since receiving my results yesterday.As it was saturday I couldnt call anyone and so, of course I spent best part of the last 24hrs crying. I am HPV positive and have borderline changes, my worry is I get period like aches very often which now I am obviously overthinking.

    As someone said everyone tells you 'dont worry' but obviously you do!I am petrified to be reading stuff that suggests this could be begining of the C journey I have to very young kids and just looking at them makes me cry as I cant imagine not to see them grow up :( 

    Its nice to read about those who had a good outcome so  I will find hope in those posts and try to stop Googling.

    Take care all x

  • Hi anya. I'm so sorry you got the same result, and you're right - it's impossible not to worry! I knew my life insurance policy inside out, that's how stressed I was. It's been awful. I think the important thing to takeaway is that this isn't the beginning of the road for the big C, this is the beginning of the road for PREVENTING something that MIGHT turn into the big C. Borederline is good, like my consultant reassured me, it's the very bottom end of the "scale" and it's what they say sometimes just to err on the side of caution, turns out when I was checked there didn't appear to be any changes at all.

    Also, weirdly the aches - I've had that the last 2/3 months too. I can't say why - I've had a scan. It's almost like In both my ovaries - my Dr thinks it's suddenly ovulation pain but I'm not convinced! I'm 34, I know what ovulation pain feels like! Whatever it is, it's not related to to my HPV results for sure. Jury is still out on that one, but it's hard not to analyse everything.I suspect I have endometriosis to be honest, my sister does. 
     

    I hope you get some solace in my story, and now that I feel safer googling I can see that for most people, this is how the result turns out for most people! 
     

    I am always here to chat, i check my emails regularly daily and I get one every time there's a reply or message ️ Next time you're feeling really rubbish please feel free to reach out! X

  • Hi ladies, I went through similar last year. Had my smear and came back hpv positive, and borderline changes. I get hip/back and abdomen pain too. I was completely  freaked out by it and couldn't stop googling. My mum had died of cancer the year before too so it just sent me into a total spiral. It is a long process being told, then waiting for the colposcopy, then the results from that(mine was Jul-Nov). Mine eventually came back that I have CIN 1 changes so need to go back within 12 months to get checked again. 

    It is so worrying and easy to tell you not to worry. I would say as everyone else says, this isn't cancer! Borderline changes can take up to 10 years to turn into cancer, and they may just disappear all together. Just try and relax as much as possible. When I spoke to friends about it too, so many had gone through similar. It's really good they do this and taking these preventative measures. There are others going through this, please don't feel alone. I really hope you get your appointments and good results soon. Sending lots of positive vibes. 

  • thanks Lisa and Bluespark 

    this is resolved soon. I am trying to think about how lucky we are that we can have a screening that can pick things up and I am sure its all fixable. X

  • Hi reading all these posts has helped a lot with all the info and support being offered up!!

    So I recently had my very first smear test, which wasn't a big deal because about 5 months ago I had a coil fitted! However I got my results back Friday saying that I had tested positive for HPV and had low grade abnormal cells. Before the coil my periods were regular like clockwork 28-29 day cycles but since have had some spotting in between my periods, a tiny bit of bleeding after sex and the last one was 5 days late but I presumed that was normal and due to the coil so thought nothing of it and didn't mention it when I went for my smear. Now I'm really worried that it was a sign I should have flagged up with the nurse at my smear and have to wait at least 3 weeks to hear about my hospital referral. Which feels like an eternity but I know a lot of people had to wait much longer over the past year due to COVID.

    My Dad was diagnosed with HPV related cancer about a year and ½ ago so obviously a big worry after seeing him go through so much.

    I'm just really worried it's going to be bad news and not sure what to do with myself in the mean time

  • Hey! I've just recieved the same results after my first smear - on my letter it said I had borderline changes and that the doctors have requested an appointment for me but it doesn't say how long this will take. Do you think 8 weeks is the norm?

  • Omg thank u I have mine on Wednesday and I've been crying since