Test results appointment

Hello everyone. My grandfather recently came out of hospital after having been told he has Meslothelioma. A cancer which has taken decades to devolpe due to exposure to asbestos and one for which there is no cure. We are to go to an appointment in a few days for further tests results as a more in-depth investigation was carried out.

Myself, my Grandfather, whom is 84, and my mother is going to the appointment. What advice I need is, what kind of questions should we be asking the consultants? I have read a lot on the internet, however, it leaves me unsettled with the idea of if we are asking everything we should be. As painful as it is we do not want to leave with saying "we should have asked".

 

 

  • I’m so sorry to read about your grandfather. I can’t imagine how you must all be feeling. The initial shock  of diagnosis  is the worst. Trying to get your head around the situation. The only thing I would suggest is to please  try to see through the diagnosis. Your grandfather is still your grandfather. I found at first I was so focussed on the diagnosis I overlooked him and allowed cancer to define him. He is still my 64 year old husband, father, grandfather and great grand father. We try to do normal in an abnormal situation. He loves normality, gossip. 

    My own experience has been with both my mom and my husband. It pays to sit as a family and all of you contribute questions and write them in a notebook. Take it with you to the appointment, it’s surprising just how everything goes out of your head with these appointments. You can make notes of the answers and any remarks/advice from the consultant. They are useful to refer to. Also close friends or people you know that have gone through this will be of help no matter how small. 

    We were surprised my husbands lungs were ok because on the 1970’s and 80’s he was regularly exposed to asbestos as he worked as a plumber in the building trade. He also used to smoke. We honestly thought that his lungs would show this. However it was also one thing less in his diagnosis much to our relief 

    Please try to leave Dr Google alone. It’s not the best place and can be flawed. Wikipedia is the worst as anyone can claim anything 

    Anyway, I wish you luck and if you would like to stay in touch that’s fine. I’m not on much but I will reply

    Take care

    Kuiper (Ann)