So many symptoms... poss lymphoma? Waiting!

Hello!

Currently feeling very worried. One week left unil  my 2ww ENT appt... my symptoms are..

Sore throat for 5 months

slightly asymmetric tonsils one of them looks swollen and cracked.

Swollen lymph node on left pea sized

Pain behind right ear and neck 

Larye hard mass below ear on right. Have to press hard to feel. 

Feel like something stuck in throat on right of throat.

Groin, large swelling between vagina and leg ( where leg crease is) and sometimes sore but usually not. Around 1.5 inches irregular shape, immovable.

Ear pain on and off for months including crusty and sore inside.

Scalp sores appeared from nowhere.

Under right arm hurts when pressed near side of boob

Small lump left of neck

Craving sugar constantly Not putting weight on despite lot of sweets etc Sores in nose and mouth

Constant mucus

Achey and tired

 

Tests so far: very low vitamins D, raised ferritin, low phosphate.  Everything else normal range including FBC

Can anyone offer advice? Feeling so worried. This morning I was rushed into hospital via ambulance for severe pain around kidneys, after collapsing at home yet I've been sent back home now. They don't know what caused kidney pain, and requested more tests including CA125.

 

notes say "urgent: Lymphadenopathy "

Does anyone have similar symptoms? What happens at ENT exam?

 

thanks so mcuh

Anna

  • Oh Anna you poor thing . 
     

    I have base of tongue cancer I don't know my staging yet 

    until I have the biopsies done on my lymph glands & my CT scan . My Tumor only showed up on an MRI . The only symptoms I had were a  sore throat , runny nose , sore ear & sore eyes .... I think the ear maybe stress as it's in the other side .  So I don't have as many symptoms as you and mine are all contained to my head and neck . I know you must be beside yourself will worry and I hope you get the answers you need urgently. It's difficult not to Google and search for answers bit I think it's made me worse . The American sites especially are awful . Keep in touch Anna you are not alone . I will follow this thread so update us. 
    hugs Ginny x x x  Ps on re reading why have you not seen an ENT specialist as it seams it all stems from your throat  I re read your post I also feel like something is stuck & I get mucus and a very dry mouth . X x 

  • Hi Ginny, thanks so mich for replying. I'm so sorry about your recent diagnosis. It is hard not to google. I'm so up and down at the moment, thinking I am imagining it.

    I headed back to the doctor last night for emergency Appt and he could feel 3 lumps in groin now, next to each other. Although he doesn't seem to think related to the throat stuff - which seems odd to me since al lymphs are up.

    I have the ENT appt on Monday, so I suppose that is a stsrting point. Also booked in for CA125 test and CT Scan for my groin lumps. I am lucky that they are being thorough, even though I feel like they're probably quite irritated by me!

    When did you get diagnosed? How are you feeling  physically and mentally? Lots of Love xxx Anna

     

  • Hi Anna,

     

    I'm just writing to see how you're getting on? I've just started the first rounds of testing to see what I may have due to a chronic sore throat. I'm 33. I'm to worried about lymphoma too as all the glands on my right side are swollen and very sore (which I think is a good sign). I also feel like something is caught in my throat but this is just stress I think. If it's not to personal to ask I was just wondering if you suffered from night sweats or if you lymph nodes in your neck were sore or tender?

    I really hope you're doing okay in this crazy time!