Large lymph nodes in neck / scared of lymphoma

Hey everyone, 

I'm looking for some advice as my anxiety has been sky high for a very long time.

So for as long as I can remember, maybe as long as 8 years or so I've had a large lymph node in my neck, I've seen numerous Dr's about this who have done blood tests which have always come back fine.

just over a year ago I noticed what feels to me like a small, hard fixed lymph node deep inside my jaw, I saw my Dr who sent me for an ultrasound and it came back normal.

in the last three months I have another lymph node on the same side of my jaw which also feels hard and fixed but this one is larger. Last week I saw the ENT where the camera checked my throat, everything looked fine but I was sent for another ultrasound where they would also do a FNA if anything looked suspicious but they were happy the ultrasound didn't show anything suspicious. 
Ive never had any symptoms like night sweats, weight loss etc but I do have tinnitus and ear pain that comes and goes a lot.

i should also mention my jaw often hurts on the side the lymph nodes are swollen 

im trying to tell myself if the scans show nothing I am fine but I still feel worried that I have fixed lymph nodes and no answers!

has anyone experienced anything similar? 
the worry is taking over my life and I really don't know how to deal with it 

thank you x

  • Hi Farah! 
     

    yes and no! 
    I have some swollen nodes in my neck/collarbone (google says is the worst and basically almost always bad on the left collarbone which I have) investigated and went for bloods, ultrasound all was absolutely fine and I keep finding more and panicking! They said that it's definitely not lymphoma and I also don't have the weight loss, night sweats symptoms. I was doing better and my anxiety got better (thank god im trying to be happy in front of my 15 month old) until I've noticed an even bigger one grape sized in my armpit on the left side where most of my lymph nodes are "swollen". So back to the doctors I go terrified - more so because I'm freaking I have an underlying health condition and this corona virus is going to make me sick or worse! 
     

    However if they are just your neck ones and not on any other region I would be more than happy with that! Sometimes they swell for an infection and never go back down! It all sounds good for you! 
     

    but always push if you really feel unsettled as I'm not a doctor lol xx

     

     

  • Hey Becks

    thank you for your reply, I'm sorry you have found more nodes, they are such a worry aren't they!

    i try to stay off Google as it always says the worst which is where my anxiety has stemmed from! 

    I have a little girl who is 2 and like you say she keeps me busy and I can switch the worry off sometimes.

    how long have you had your swollen nodes for? Do they feel hard and are the moveable? I think that is what has scared me most as some of mine feel hard and fixed.

    i really need to stop letting this take over my life!

    i hope you get sorted ASAP with your underarm node, 

    X

  • Hi Farrah1 

    sorry to hear about the worry your going through with your lymph nodes I have been in exactly the same position, I've had a quite large gland/lymph node in the left side of my neck just under my ear next to my jaw bone for 3 years now (that I know of) I've been to a few doctors about it and neither of them sound very worried , one doctor said it could be a blocked salivary gland and sent me for an ultra sound , and the worry leading up to this ultra sound nearly killed me! As I had to wait about 2 months , at the appt I was seen by an ent first he felt my neck and just looked at me like I was abit crazy but he sent me in for the us the sonographer said I had quite a few lymph nodes in my neck which were normal ( I had felt these before but wasn't worried) he then went over the lump in question and said it was just a normal salivary gland , so I was happy with that ( this appt was last year) but a few weeks ago my health anxiety sparked up again and I started to worry again thinking it has grown in size but my husbands saying it's in my head which I think it could be , I could kick myself for not asking the sonographer why the salivary gland isn't as big on the other side! But I spoke to a nurse on here who said the Body isn't symmetrical. I keep telling my self I would be ill by now if it was anything sisnter. I feel like we're in the same boat as we have both had investigations into these lumps and are bothe still worried about them. The sonographer also said I can feel them more because I am skinny. I just wish it was the same size on the other side of my neck! Anyways sorry for the long post.

    Hope your well and stay safe x