After having a contrast MRI pelvic scan my consultant gynaecologist told me that one of the fibroids in my uterus looked very abnormal, showing high contrast readings compared to the others. I also had urgent CT abdomen, pelvic and thorax scan with contrast which was clear, as well as an ovarian cancer blood test and others which again were clear. Even so the MDT and SMDT discussed my case and has deemed the fibroid suspicious and recommended a hysterectomy. I'm absolutely stunned as they have not actually given a definite diagnosis, but the consultant said they wouldn't risk wanting to take a biopsy of the fibroid as the needle could burst it and spread the cancer to surrounding tissues. They say this but at the same time can't confirm it is cancer.
I do have a number of fibroids and previously asked about a myeoctomy or uterine embolism but was told that both were dangerous and not appropriate as I have multiple fibroids. I feel paranoid and that they're using the abnormal fibroid argument to just go down the traditional route of a full hysterectomy when there could be other options.
If I have the hysterectomy and they found that nothing was wrong then I would have gone through all the stress, a major operation and premature menopause for nothing. Im still deciding what to do. Is this normal, to have surgery for "suspected" cancer without solid proof? They're not telling me I have cancer but at the same time saying that I would be going to a specialist hospital to have the hysterectomy by a sarcoma team. Would appreciate some help understanding this or if anyone has had similar experiences. I'm so worried, stressed, upset and confused about it all.
