Hi Lyn,

I am glad to hear that you got the phone call today. It is also good that she is is writing to your GP asking him to increase the Diazapam.  This should be a help for you. No doctor is keen to put a patient on to anti-depressants or to leave them on them for any length of time, but I'm sure that he will be happy to increase your dosage at her request.

I sincerely hope that they make  a difference to how you feel.

Stay strong,

Kind regards,
Jolamine xx

hi Jolamine, unfortunately she is not suggesting an increase in the diazapam, but an increase in the anti-depressant.  I am also getting worried about my appointment being cancelled.  Last summer when I had a breast cancer scare, I met a lovely lady who did turn out to have breast cancer.  She has been through chemo and radiotherapy and her mascectomy was due 5 April with a pre op this week.  This week she was informed that it had been cancelled!  Anyway, now because it is classed as urgent the preop is on Wednesday and I pray that the mascetomy  goes  as planned.  Life can be so cruel.

Hope that you are staying indoors as much as possible.

Lyn xxx

Hi Lyn,

My misunderstanding. Still, your anti-depressant should help too. Do you know which one you are taking? The Diazapam leaves you spaced out, so your anti-depressant should be more helpful. What a pity that the lady you mention had her pre-op cancelled this week, but good to hear that she now has an appointment for this on Wednesday.

I cannot remember what the maximum length of time can be between the pre-med and the op. It's not that long, because I remember having to have a second pre-med before one of my ops when the amount of time had expired. I am sure that they won't be carrying out any unecessary pre-meds at this time, so she should be getting her masectomy as planned.

Kind regards,

Jolamine xx

Well guess what, Joalmine, I got a call this morning cancelling my appointment! It felt like a knife being twisted in my stomach, Coronavirus I suppose.  Anyway I phoned the Consultant's  secretary and she said that I should not have been told that and my appointment is still on.  I would have gone completely insane I have been in limbo for three weeks already not knowing anything about the nasal cancer that I have growing in my face. 

My friend due for the mastectomy says that all the cancer has gone from her breast so she is not to botherered by a delay in her op.

Fingers crossed I get ther on 31 March xxx

Hi Lyn,

I have just been listening to the evening news and how some hospitals are deferring chemo and cancer operations. It makes sense to reduce the risk of contracting COVID 19, but I am sure that many cancer patients and their families will feel very upset about this.

I am sure that you must have been frantic to receive a cancellation for your appointment at the end of March. I can understand this being done for operations and chemo, but not for getting the results of tests. You have already had a three week wait, which is very trying. I am so glad to hear that you have contacted your consultant’s secretary and that she has said that your appointment is still in place for 31st March.

It is great news that your friend is now cancer free. I am so glad for her and, can understand why she is not too worried at having her operation postponed.

I cannot remember whether or not I asked you before, but I hope that you plan to take someone with you when you attend for your appointment. It is always helpful to have someone with you.

Having had this confirmation from the secretary this morning, it looks as if your appointment will go ahead on 31st and, I’m sure that you can hardly wait for this.

Less than a week to go now.

Stay strong.

Jolamine xx

Hi cocobob

i was thinking about you did you get any news ?

Omg I so feel for you, but how lucky was you, and me I was the same I've still got to wait till next week to find out if they got it all, like you mine was DCIS STAGE 0 but they can turn cancerous. It was 4cm but it had ant gone anywhere else.

look enough about me, your coming out the other end, I would say take everything they offer you if it makes you feel better, and it gives you better chances down the road.

where did you have your surgery had mine in london terrible exsperiance that's another story.

im 62 thank god children all gone don't know how you got though it especially in this lockdown, with children as well, hope you have a partner to talk to

thinking of you

sue

It's all a very frightening experience at any time isn't it let alone in this crazy lockdown world we are living in. I'm missing my mum so much and my friends too. I feel so alienated as dr advised me to not go shopping or out near people before surgery and now I'm preparing to have chemo I can't go out either. I have also been told that itv would be very unsafe for me to go back to work until my chemo is over too which is November.... That's so far away. Hoping I'll be able to do a bout of work from home but with the kids off school and probably not going back until sept I'm not going to get a lot done am I?! Normally my mum is here to help but she's shielding as she has diabetes and also early stage CLL so she can't even help me through this. My husband is great and has been amazing most of the time - tally looking after me. He isn't much of a talker though and I know I do his head in the way I think about stuff so much. I tend to try not bother him too much with my 'whittling'

My surgery was ok. I had to wait 7 hours on my own in a little room with just a chair in, no good, no water and I had just got my period that morning to top it off! I felt dreadful! Didn't enjoy that one bit. Staff were lovely though. Why was yours such a bad experience ? Did you just have a lumpectomy or a mastectomy? How has your recovery been? You are very lucky to have stage 0 ️  Hope you get good news next week and they managed to get it all. X 

My local hospital has a brilliant team their but because of the virus all operations were being done at a different hospital, I had a lovely lady ring me called Betsy from my local saying that yes they were taking me in on the Tuesday.,and somebody would ring me from the other hospital with all the information etc,and I asked if they could email me the letter as all the post is up the wall,so this was what I thought was going to happen.

i never got any email all I had was Betsy phone number at my local I got in contact with her she said that she was gonna phone them, she also said that I was the only one there were two other ladies who said the same.  God it was a nightmare,I didn't know what department to go to, when to fast from etc .

i decided to go in the morning for 7 am at 8 am I gound where I was supposed to go, the nurse had the Cheak to say I was sent the letter, my b.p. Must have been sky high.

why don't you ask if your children can go to school because government said under special circumstances key workers etc their children can go to school worth a try.

well our next step we'll mine is hoping it comes back all clear, and for you your chemo.

keep in touch if you would sooner go though

ill keep my fingers crossed

sue