Polycythemia advice

Hi Everyone 

I really need some advice 

I am.being tested for polycythemia vera due to my high red and white blood tests 

My symptoms are 

Headaches

Tiredness

Itching 

Heart palpitations 

Hot and cold flushes

Aching bones 

Can anyone help in telling me what symptoms you suffer from

It's been discussed that if I have got it I may need to have some blood removed to help me.is this normal a d it will it be a one thing .Also is this cancer if so how do u get more support 

Thank you 

  • Welcome to the forum Jackie although I'm sorry for the reason you're joining us.

    Hopefully some of our members with polycythaemia vera will share what symptoms they had before diagnosis with you soon but if you'd like to join in on previous discussions about this diagnosis, just use the 'search forum' option in the blue bar above.

    You can also read up on polycythaemia vera just here and talk things through with our cancer nurses on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator