Newbie,, soo confused and worried!!

Hi all , I'm looking for some advice on where I'm at and where I go next?!,, I'm 49 and had 2 cases of pneumonia 4 months ago, I saw a consultant and had a ct scan,,!

i went back for the 1st review of the ct scan still very short of breath!, I was told it's the pneumonia that's taking it's time to pass!, I get that and carried on, the shortness of breath continued followed by 6 trips to a and e with the same symptoms!, I had another ct scan  6 weeks ago and further trips to doctors worried about my shortness of breath!, I even asked to go private for a 2nd opinion!!, but was told I have a very good consultant!,  

this is where it gets scary and confusing for me!, last Friday ( Valentine's Day) I went to see the consultant for the review of 2 nd ct scan!, on arriving at the hospital waiting room I found myself fast tracked to the front of the line!, I entered and was asked how I've been etc etc, I told him that my breathing was as bad as it was 5 months ago!, out of no where a last appeared and the consultant said the mass had got a lot bigger and cancer was mentioned for the 1st time, it all was a blur , I was listening to him but nothing was going in!!, the lady took me away and told me they had arranged a pets scan for a few weeks!( I've never heard of a pets scan before)

 I left feeling so scared and worried, when I got home there was a phone call from the hospital asking me to come in the next day for a pets scan!!  I went along and took my sister as support, when I got to reception the nice lady asked if my sister was from Macmillan!!, if I wasn't scared before I was petrified now!!, the test was done and I left!!, 

today I went to my gp who knows nothing about my hospital trip !!, and told me to phone the hospital, I did this and was told my case was being revived next week!!! I don't know what I've got  how big it is and if it's spread!!??, have I got cancer ??, sorry about the long post I'm crying and alone as I write this!, please help me 

Martin 

  • Hi Martin,

    I'm so sorry about the ordeal you've been thorough, what a horrible time you've been having! It sounds like the hospital hasn't handled things very well or given you clear information. Anyone would be feeling stressed and scared.

    Nobody on here can say for sure whether you do have cancer unfortunately. Only your doctors can confirm. Waiting for your next consultation will be a very anxious time, I'm sure, so I really hope you have some good support around you. Are you spending time with your sister, and maybe other friends and family?

    The best thing to remember now, I think, is that the doctors are working hard on your diagnosis. If the results do come back next week showing cancer, you will be fast tracked and given the best care and treatment.

    Perhaps you could phone the nurses line on this forum to chat to a medical professional about your concerns?

    I'm so sorry you're going through this stressful time and I hope you get some answers next week. All the very best of luck.

    Jenny

  • How scary for you. I cant even imagine how you feel. I pray that all will be okay for you next week, im just so sorry you are going through this. Try and stick to these forums and not google. Theres alot of supportive people here that will be able to help you through this process

  • Thanks for your replies', I think it's natural instinct to worry!, im

    just feeling a little left out!, it's tho the consultant has had a chat and I missed it!, until Friday I was just under the illusion I had the lasting effects of pneumonia!, you couldn't make this up, I've kept all my discharge letters, the 1st time I was in for 4 days!, I was released after they gave me oxygen and a nebuliser for a few days!, they done some tests and released me with a infection!, I was back in the same ward less than a week later with the same symptoms, this time it was 9 days , I had ultrasound on my heart , I got tested for water on my lungs, they checked for a blood clot on my leg!, all tests fine, bloods fine!, they released me with copd and said give up the cigarettes,,,, that I don't smoke!!!, , I've been in 3 hospital a and e!, all done tests!, nothing but I still fight for every breath!, I've had over 10 gp appointment all asking for help with my breathing!, only to be told come back in 2 weeks if no better!!,,, then out of the blue I'm in a consultants office one minute, giving blood the next mi Ute then having a pet scan the very next day!!, it's like I've skipped a step somewhere!!,  if you saw me in the street breathing like I do you would be calling an ambulance!!,  I'm soo angry , scared, and not got a clue what I'm waiting for!, 

  • Martin ive been thinking of you, how are things now? I hope you have got some answers