Co2 laser treatment of moderate Dysplasia of the tongue

I was diagnosed with Dysplasia of the tongue a few weeks ago and have just had c02 laser surgery. I'm a lifetime (now mid 60's)  non smoker and drink only in moderation and consider myself to be reasonably fit and with a varied diet that avoids spicy foods. So I'm a bit miffed that I have succumbed to whatever it is that has triggered the onset of the Dysplasia. Before the operation I was asked a number of times whether I have any allergies. About 3 years ago I suffered a severe allergic reaction to something which made my eyes red itchy and swollen to the point that I wanted to scratch out my own eyes. I ended up in A&E and was prescribed cortisone steroid cream. This did the trick but I then realised that I was continuing to have an allergic reaction to whatever it was which was manifesting as Oral Allergy Syndrome (OAS) and certain fresh fruits and vegetables would make my lips and tongue tingle and begin to swell. After some research on allergies and the timing of when the symptoms appear I came to the conclusion that it's a Birch Pollen Allergy. It might be nothing but a coincidence but we have two Birch trees in the street in front of our house and for years I have slept in a front bedroom with the window open - within a couple of metres of the crown of the Birch trees. So - this is the question - could there be a connection between the OAS and the subsequent onset of oral Dysplasia ? I have mentioned this to my GP, my dentist, my Consultant and the aneathatist but none seem to be up to speed on allergies. I'm going to try and see if I can approach this on a multi-agency basis and get these professional to talk to each othe . I'm not one for reinventing the wheel so if anyone knows of any established links between OAS and oral Dysplasia please chip in - but I've not managed to find anything yet. 

  • Hi Caulkehead,

    Welcome to Cancer Chat. I can certainly understand this must be frustrating and it makes sense that you're keen to find out more about this. Unfortunately it's not something I can advise on and if the professionals haven't been able to shed any light then it may be unlikely that we on this forum can do so - however if anyone has any relevant experience to share then hopefully they'll be along soon.

    In the meantime I hope you're able to find out more soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Ben,

    OK - thanks. There are a couple of other posts on the subject of CO2 laser treatment of tongue lesions so I thought that I would report my own experience of this predicament to see if I could prompt further debate with anyone who has suffered from oral Dysplasia for no apparent reason. I have no doubt that I have received best advice and care from all involved thus far and I am grateful for the very prompt attention I have received - but I do wonder whether they (as individuals) are seeing the bigger picture or joining up the dots. Of course I might be misleading myself and it would be unfair to pursue this with the professionals involved without first testing the water so to speak on a forum such as this - so my post was always going to be a bit of a shot in the dark... but who knows ....?  I have always lived by the maxim 'if you don't ask, you won't get'. Regards, Caulkhead

  • Hi,

    I hope you are well and don't mind me sending you a message.

    I found this whilst trawling through Google.

    I have just had the laser surgery to remove a moderate dysplasia lesion on the right side of my tongue.

    Like you I have never smoked and drink in moderation, wine, no spirits but an occasional brandy was nice.

    I am 55 and the white spots were first detected in December 21.

    I cannot find a support group for fellow patients and wondered if you knew of anything?

    thanks

     

  • Hi - this thread hasn't generated any other debate on the subject and I've drawn also a blank when talking to health care professionals from various disciplines.
    Unfortunatley since my post to this site I've had a stroke (Nov 2020) and then around Christmas 2021 my tongue started to get sore again. After a 2nd biopsy I was diagnosed with a Stage 1 borderine Stage 2 oral cancer. Having already had the laser surgery - which regretably didn't head off the underlying cancer - I was advised there would be little option but to have full surgery to re-sect a part of my tongue under a full anaesthetic - which turned into a 10 hour operation because of the restorative work which involved removing 3 teeth,  taking a graft from my wrist and stitching it to my tongue and a neck re-section to remove a few Lymph nodes. If it sound gruesome - it was. Akin to being thrown under a bus. I wouldn't wish it on my own worst enemy - but in retrospect 6 months later I am still here ! I hope for your sake the Laser surgery is all that you have to endure. Good luck. When I asked the consultant if there was a Plan B he said no - and then whilst explaining the likely procedures coming down the line ... I promptly feinted ... which scared the life out of him ;-)

  • Hi,

    I am so sorry to hear of your stroke and the cancer diagnosis, subsequent treatment.

    I hope you are feeling somewhat better after undergoing such diagnosis, surgery etc. I really wish you all the best.

    I am beginning to realise that there are maybe not many people that were lucky enough to just have dysplasia. It seems everyone is having such later diagnosis and surgery.

    I am very much being pointed in that direction.

    I am familiar with the neck dissection surgery since my mum had it 7 years ago. It was the most awful thing to witness and watch her go through. I have questioned if I got to that point would I want the surgery...but I have a family and I think I would opt for it in the end.
     

    It is good to hear that you are ok though and feels positive that you have come out the other side, albeit different but survived!

    Thanks for sharing your story with me.

    Take care x