Hello! 
first time here. 
basically, my body is a huge puzzle. I have a condition called Arnold chiari malformation and a blood disorder called von willebrand. 
ive has 3 children. 
6 months ago I had my third child. With every baby I have heamorhagged very bad due to my blood. Which they only found out about in my third pregnancy due to investigations. 
I haven't had a single period since having my third child. Every time I have sex with my partner I heamorhagge severely. Admitted to hospital on drips and having blood transfusions. 
mum very fatigued. I've lost a hell of amount of weight. I have this horrendous pain around my hips and the top of my tighs I have no energy what's so ever and tmi extreme amount of mucus type from down there. I also feel the need to pee constantly. Don't have a uti. I'm just so scared as (cc) ruins in my family and most of the women have had it and passed on unfortunatly. Very young too. 
im just real scared. I'm only 24 - not saying you should have it at any age. 
just petrified if I'm honest. 
 

sorry to be a nag to anyone or a pain