Letter copied in from consultant to doctor

Hello,

My mother in law has recieved a letter copied into her from her consultant to her doctor. She wasnt too sure on the content but as soon as I read the letter, I knew straight away what it meant. I also had some of the terminology confirmed by a cancer research nurse because I started to doubt myself, as it was just so inappropriate to send a letter of this nature to someone and not speak to them in person first.

The letter says:-

"from the PET CT we confirm extensive lung metastases and large liver metastases" It then gos on to say that the primary could either be from a hepatic malignancy though metastases from the colon or urinary tract is possible and after her liver biospy it will need to be discussed at the CUP MDT.

I think informing someone they have secondary cancer by letter where the patient has only been copied in is absolutely outrageous. Has anyone else had this before? I cant quite believe it to be honest. I had to sit and explain it to my husband what it meant and then he had to explain to his mum. My mother in law is only 58.

I guess in one way we now know what to expect once she does get called in to see her consultant after the biospy.

Thank you

 

  • Elaine

    So sorry to read this and sorry for your mother in law. I'm absolutely shocked by this. This is no way to convey a diagnosis. As you say you have been forewarned prior to consultant meeting, however I would be raising this with the consultant if it were me as to ensure no other patient has to learn their diagnosis in such a callus way.

  • Thank you for your reply magpiemaggie.

    Initially i thought maybe it was sent to her in error but at the bottom of the letter in small print it says "FAO patient, you have been sent this document as you are entitled to know about your care etc"

    My mother in law seems to be ok and hasnt really said much about receiving the news in such a way but im guessing she now has more pressing issues to be concerned about. But im absolutely appalled and i will bring it up at her next appointment. 

    Thank you Elaine

     

  • Hi Elaine

    Not sure I would bring it up at the next appointment, your mum needs to feel that appointment is all about her and her treament, needs. I would raise it with the GP and ask him to write to the consultant about your/MIL experience. The GP should act as your MIL's,advocate and he'll know how to write it so that nothing comes back on your MIL - as you say she has more pressing issues.

    I had a problem with one of my medical team and my GP took care of it for me, that way my focus could be on getting through the treatment.