That's good to know, but that says no abnormal cells found them you would be put on 3 year recall, but does that stand with hpv, it's a bit conflicting 

I might call that number this morning to ask x

Hi,

did you call that number? 

I have ended up researching again tonight as I just cannot shift the worry. I have come across this document. 
www.bsccp.org.uk/.../NHSCSP_20_Colposcopy_and_Programme_Management_(3rd_Edition)_(2).pdf (I think you'll need to sign up to the website to see it).

It is the NHS cervical screening programme by Public Health England. Have a look on page 84, there's a flow chart which basically says - smear > borderline changes = hpv tested> Hpv positive = colposcopy > negative,borderline or low grade with HPV = routine recall which I assume is 3 years 

its only with the other results of the colposcopy that seem to be 3, 6 or 12 month invite to check for cure. Tbh it's made me feel a bit better so hoping it might help you too x 

Hiya sorry I have only just replied I missed this.

i didn't phone this helpline but I had the callback today a week and a day later from when I phoned about my query about the HPV.

the lady said I was put back on 3 year recall as nothing showed up on my colposcopy and that they can see the HPV there aswell, she said it wasn't showing with me so all clear and back to normal recall.

but what I find strange is, I have my smear 3 years ago, it shows high risk HPV, then suddenly 3 weeks later at colposcopy everything's cleared itself?? Even the HPV

Yet 3 years later it's back, and is now with sever cells. 
It doesn't sit right with me? Can HPV clear then come back again high risk. I'm so confused!

anyway going to ask all this at my appointment tomorrow as none makes sense. I'll let you know how I get on xx

Hiya, 

Yes please do let me know how you get on tomorrow.

I'm still so confused but I've had to try and shove it to the back of my mind as I've still got a two week wait until my smear, which will then be exactly four years since my last one, and it was really starting to ruin every second of the day worrying about it. Have to keep telling myself that even if it's severe cells they can do loads to get rid of them! Make sure you tell yourself that too x

Good luck for tomorrow x

Hi

i was wondering if any one could give me some advice. I went for a smear test and it came back positive HPV , I'm really confused and worried has I'm a 53 years women and never had anything like this , iv had the same partner for 12 years and we're not very active , I had a smear test 5 years ago and everything was fine so I'm confused to when I caught it . Dose this mean my partner has cheated has I'm frightened to tell him until iv done some research on it . Has anyone had the same problem .

Hi Loran

first of all, no it doesn’t mean your partner has cheated. The hpv virus which causes abnormal cells is transmitted by genital contact, and is extremely common. If you have had more than one sexual partner you could have picked it up at any time but you will not know how you got it as there is no test for men. You could have got it from your current partner, but it’s not a sign of being unfaithful. 

Once you have the virus in your system it will always be there but can go dormant and not be active.  When it is active it can cause cell changes, although this doesn’t happen for everyone. It depends on whether your immune system can clear it or not. x

Hi Minska 

Thank you very much for your reply, this is the first time iv ever spoke to anyone in this way . It's just been a confusing week for me has it made me feel iv done or my Husband has done something wrong , I know when I bring this conversation up with him it might cause a big issue so I just needed some background on HPV first . But thank you again for being there and il let you know how I get on . Are you ok xx

Loren

Hi Loran

I’m doing really well thank you. There is a lot of misunderstanding about the hpv virus but never, ever feel guilty that you have it. I’ve never been told I have hpv, but I know I have because of my cancer. 

You would probably be astonished at how many people carry the virus..anyone who has ever been sexually active can get it and for the vast majority they will never have any issues, and men won’t even know. For some of us, the strains which cause abnormal cell changes do cause issues, but if they are caught early through cervical screening they can be treated long before they turn into cancer. There are more than 100 strains of the virus and not all are high risk..for example the strain which can cause genital warts does not cause cervical cancer. 

Please dont think either you or you or your husband has done anything wrong, because you haven’t. I hope you can have a discussion with your husband where he will be able to see how common this virus is, and that it’s no-one’s fault if they have it. Good luck! x

Hi Minska

once again Thankyou and I'm so sorry to learn that you have cancer has my delemora is minor to yours , I really hope your ok and please keep intouch has I feel better after speaking with you and learning this is common and I would like to be here for you like many people . It's my wedding anniversary this weekend so maybe not the right time to tell him lol x but il let you know how I get on and hope to hear from you soon to let me know how your getting on .xx

loren x

Hi Loren

Dont worry about it-we all have our things to go through which are tough for us to deal with. I had a total pelvic exenteration in March this year when my cancer came back, which involved removing all the organs in my pelvis. It also removed all of my cancer with very clear margins and my recovery is going very well, despite being left with a colostomy and urostomy! So things are really going very well for me overall and I’m very thankful I could have the surgery, even though it has been life changing. 

Keep in touch, and I’m on here often so will pick up on replies. Fingers crossed for your conversation with your husband. Just because people don’t talk about it you probably know lots of people who carry hpv and there really should be no stigma attached to it all. Xx